Suspected breast to bone Mets

Former Member
Former Member
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Hi everyone its my first time to post on here.  My sister was diagnosed with breast cancer hormone receptor positive her2 negative her consultants were very positive about diagnosis she had chest xray then a lumpectomy, they said tumour was 3.5cm buy when removed it they said it was widespread but they had removed all with clear margins and surgery was successful,  they told her she would not need chemo only radium,  they then told her at next appt that they would be reccomending chemo as there was a Microscopic trace in her sentinel node all other nodes were clear they were over all happy with her and said she would be on hormone therapy after her treatment for 5 years.. she went to another hospital nearer home for the chemo and he had different attitude nd was very negative( which nobody needs)  he said it was very serious as cancer showed in blood vessel nd he wanted to do full ct scan,  she started her chemo then next week had the scan a week later a nurse phoned and said some lesions showed on her ribs and they wanted to do a bone scan, we went down for results and he said for someone with breaat cancer he would find her scan very suspicious ribs and pelvis decided to do a biopsy to confirm it came back negativeb and decided to carry on with original treatment she has 4 done nd started taxol the last 4  the bone scan also onlu showed the ribs but he said it could the bioposy could be a false negative and they have decided to do another biopsy.  She has 2 taxols done and is waiting now to see when next bioposy done... she has not lost any weight is in zero pain and apart from the chemo side effects she is in great form... how were any of u with bone mets diagnosed,  i still wonder if there's a chamce it could be something else when she has no symptoms or hopefully its very early i just wonder if any way he could br reading scan wrong as he always seems negative.  Sorry for long post i would jsut love if anyone had experience of anything similar or share any of ur bone mets stories which were founf early nd living normal life.   Thanks for reading

  • Former Member
    Former Member in reply to Former Member

    Hi soz to jump in on this.  I had an inverted nipple which turned out to be a 6.5cm tumour.  All set for mastectomy RT etc but GP - not BC Unit asked for a CT and MRI as I had complained of breathlessness. I turn up at the BC Unit to be told sorry the ct scan was not good so we are referring you to Oncology nothing we can do you have mets in your spine ribs pelvis and  lungs (breathlessness!).  Off you go and have your MRI.  Next hour was spent with my alone (they said I didn’t need my husband with me as I was simply going to be given the order of treatment) lying in the mri noisy box sobbing.  Worst hour of my life.  I had to drive home then and tell my family. Not was badly done.   2 weeks later I see the Head honcho and he is amazing.  Tells me everything I need to know and when pressed said on drugs available atm so e ladies have lived 3 years.  Well it is now 3 years and I can thank Palbociclib for that but the mets! Uncomfortable yea but it is the side effects of all the other stuff that is the worst thing. Our NHS is under siege and I am lucky that I live close to what is classed as a centre of excellence re cancer treatments.  I had a second opinion privately and they concurred with all treatments proposed.  I have no issue with the oncology team but the BC Unit were so intent on reconstruction and mastectomy and I am sure they would have done their due diligence at some point but weeks would have been lost and what a white knuckle ride it would have been.  I still have nightmares about the MRI hour.   Maggie of Maggie’s had an experience not dissimilar which was why she started her charity.