Looking for some experiences. I was initially diagnosed in May 2021 with bc, had mastectomy then chemo and radio fast forward to July 2023, I had spoken to oncologist about pain in my back I thought it was after effects of surgery and ongoing medication but was told I had secondary breast cancer in my spine and sacrum. I was offered ablative radiotherapy which was hard going but manageable. Since that finished iv had CT scans evert three months tht have been stable.
At my last oncology appointment I was again told scans were stable but they wanted to do bone scan Dr stressed there was nothing in the scan to prompt this bu it would be good to get done.
Had usually CT in October followed by bone scan, they then asked for an x ray of right hip and leg areas didn't know and when I asked why I was having it done was told Dr had requested it.
On Wed I received a call from usual oncologist which generally means bad news, she asked if I had ever had a fall which I haven't, then said something had shown up at the top of my femur and given my history it's a worry. She would like to do an mri ro have a proper look. She said the other areas were looking good. She had compared other mri and this area hasn't shown up before.
I'm already preparing for the worst but wondered if anyone else who might of had ablative radiotherapy, where you allowed to have it a second time? When I had it there was lots to take in an I vaguely remember consultant saying they could only do specific areas and I'm not re if he said it couldn't be repeated???
Sorry for long read....any advice welcome.xx
Hi Lfc74
I'm not a member of this group, so don't have the experience you're looking for, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
