I had breast cancer October 2021. Lump removed, radiotherapy but no chemo. I discovered a lump in my neck, went to my GP who did urgent referral to ENT on Feb 1st. Since then I have had to chase EVERY appointment and finally had a biopsy and CT scan which showed secondary cancers in my lymph nodes, Spine and both lungs. Finally got to see an oncologist last Thursday (18th April). Treatment plan is Ribociclib/letrozole but need tests prior to starting the treatment. I have now found out there is a 5 week wait to even get an appointment date, at Chemo unit for these tests, lets alone starting treatment. That will be very nearly 4 months from referral. Has anyone else had these long delays? I am finding it VERY stressful and in my mind picture all the cancer cells reproducing at a rate of knots before any treatment started! Anything I can do to speed things up? I thought there was a 62 day from referral to satrt of treatment set out by the NHS?
I’m not sure about the nice guidance but I was having biopsies, mri, ct and pet scans from October 22 to January 2023 till secondary diagnosis in February 2023 and then began letrozole and ribociclib from march 2023. It’s a total rollercoaster and I think that’s how it is.
Make a complaint to the oncology department and see if it helps you. It’s so stressful waiting though
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007