I was diagnosed with bone metastasis in May 2023, and am on ribociclib + letrozole. I've had 5 hospital admissions with severe infections, cellulitis, gastritis, and uti with kidney involvement x2.
I've had so many antibiotics,since January Ive had 6 weeks of oral augmentin + iv augmentin, +Gentamicin + Taz iv. (Currently recovering in hospital). They haven't found the actual bug causing the infection, but I'm told the infection markers were very high. Each time my oncologist says this shouldn't happen again.
I feel I can't plan to do anything, and have missed out on weddings, a special holiday, and many other events. I know I'm moaning but these various infections make ever9so uncertain.
Are any others experiencing this kind of thing. I'm confused by what the oncologist says and what is actually happening.
I'm grateful for this space to share and let off steam.
Sea Ranger.
Hi Sea R;anger
Sorry to hear that you have been getting recurrent infections. Moan away as you are perfectly entitled to have a moan with all that you are going through.
Hope you start to feel better soon and that you have no more infedtions.
Best wishes
Daisy53
