Hello lovely people,
I hope you're all doing as well as you can be!
I'm looking to connect with people who are in a similar boat to me but who are keeping as positive as possible about their diagnosis. EIther anyone with stage 4 MBC who has been living with it for a while or just anyone who can share some uplifting stories or maybe someone close to my age? I have HER2+ & ER+ - Metastic Breast Cancer, in my left breast, nodes and then a slightly enlarged node in my right hilum (my lung I think?) which is only 8mm so my oncologist seems hopeful that the chemo should keep that at bay (fingers crossed).
Currently on Docetaxol, Herceptin & Perjeta, and then Letrozole to keep that pesky oestrogen away - fingers crossed that they're doing their job and shrinking the tumors and hopefully moving me towards NED/NEAD (honestly, the ultimate goal!). Wondering whether anyone has been on this combo of drugs and had good results etc.?
Also! Keen to hear any stories of anyone who has maybe gone through surrogacy? Always wanted to be a mom and as long as my cancer is treatable (which my oncologist says it certainly is) and can be kept at bay for as long as possible I don't want to restrict myself of anything in life that I have wanted.
Very new in this journey - only two rounds of chemo in (most recently 2 days ago!) - with at least 4 rounds left of docetaxel, potentially more who knows?!
Sorry if this is a little rambly - chemo brain is well and truly kicking in! Thanks in advance for your answers :) xx
So sorry to hear your diagnosis at such a young age , I had breast cancer 13 years ago and diagnosed last November 2019 with secondary cancer in my bones . I had 6 rounds of docatexel and phesgo - the perjeta and herceptin combined in an injection and a bone strength injection also . The chemo was not too bad - did have some side effects as it built up - I now just have the 2 injections - obviously doing the trick at keeping it at bay - my cancer marker has dropped from over 200 to 14! Last ct scan was stable with no further disease! I have no reaction to phesgo - just a nuisance having to go every 3 weeks to hospital for it , but can’t complain as it is obviously working.
Keep your self well and stay positive there are lots of drugs our there, will be thinking of you .
Thanks for sharing Georgina and it sounds like you’re an amazing person to be so positive so early in your journey.
I’ve had stage 4 MBC and was diagnosed in June 2020 at 39. I’ve had 6 rounds of EC chemo and now on letrozole, goserelin, palbociclib and zoledronic acid as it has spread to my bones. Ever since my diagnosis cancer has shrunk or stayed the same so let’s hope that continues.
happy to help in any way possible.x
Hello! I’m 38 and four months into my diagnosis. I’m ER and PR+ And on different treatment to you but thought I’d drop by and share this link to an online session Breast Cancer now are running for younger women.
I haven’t met anyone of a similar age in a similar boat, my oncologist recommended I signed up to this.
https://breastcancernow.org/younger-women-secondaries-together-online-registration
I'm so sorry to hear your diagnoses.. I have the same cancer as you and Winship, but am the ripe old age of 60, so at a very different stage of life. I had 6 rounds of Docetaxel ,which I tolerated well and now have the Phesgo injections every three weeks. and Letrozole tablets daily. I'm back at work, doing 30 hours a week and coping well. My oncologist has said this type of cancer is very treatable, with lot's of new things in the pipe line. Keep positive, you sound amazing and hopefully life will be all you ant it to be, xx
So sorry to hear of so many younger people being diagnosed- I am 65 - but as you say the treatments have developed so much over the years - so let’s hope we can all enjoy our lives to ripe ages!
Glad to hear you are back at work , I am retired but like to remain active with my family and 4 grandchildren! My main problem is that the vertebrae in my back collapsed before I started treatment- so my back is bent which makes walking distance uncomfortable- I have a wheelchair but don’t like being in it but find if going to walk far it is easier- my oncologist suggested I got a walker with a seat !!! I did tell her that I know I’m no spring chicken but don’t want to look anymore like an old woman ! At least I can laugh about it !
My hair is back also but dark and very curly !
The things we go through!
Keep smiling everyone and take each day at a time x
Hi All,
I have the same diagnosis, which was picked up last March. Chemo done and now on the same drugs, for hormone blockers, her2 and bones.
I have a friend with the same diagnosis and and she is 2.5 years into treatment. Her spine collapsed and that is how she first found out. She has had rods and bolts in her spine and is very fit using a cross trainer and personal trainer to ensure her core is toned well to ensure she doesn’t use her spine for muscles her stomachs can use instead
I'm so glad to hear that the medication is working for you :) Long may it continue!
Thank you for flagging that to me :) I have registered for it and I think I will be joining a session next week so hopefully I'll be able to connect with a few people
So glad to hear that your cancer has either been stable or shrunk - that's all we can really ask/hope for in our situation :) I have my first scan since starting chemo in around 3 weeks and I'm quite anxious about it but I am trying to stay hopeful that everything is shrinking.
I definitely have really bad days, but I'm hoping that the good days outweigh the bad x
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