Hello lovely people,
I hope you're all doing as well as you can be!
I'm looking to connect with people who are in a similar boat to me but who are keeping as positive as possible about their diagnosis. EIther anyone with stage 4 MBC who has been living with it for a while or just anyone who can share some uplifting stories or maybe someone close to my age? I have HER2+ & ER+ - Metastic Breast Cancer, in my left breast, nodes and then a slightly enlarged node in my right hilum (my lung I think?) which is only 8mm so my oncologist seems hopeful that the chemo should keep that at bay (fingers crossed).
Currently on Docetaxol, Herceptin & Perjeta, and then Letrozole to keep that pesky oestrogen away - fingers crossed that they're doing their job and shrinking the tumors and hopefully moving me towards NED/NEAD (honestly, the ultimate goal!). Wondering whether anyone has been on this combo of drugs and had good results etc.?
Also! Keen to hear any stories of anyone who has maybe gone through surrogacy? Always wanted to be a mom and as long as my cancer is treatable (which my oncologist says it certainly is) and can be kept at bay for as long as possible I don't want to restrict myself of anything in life that I have wanted.
Very new in this journey - only two rounds of chemo in (most recently 2 days ago!) - with at least 4 rounds left of docetaxel, potentially more who knows?!
Sorry if this is a little rambly - chemo brain is well and truly kicking in! Thanks in advance for your answers :) xx
Hello :)
That's so great to hear! My main goal right now is to get to NED, not always possible but with stories like yours there is always hope! I find that when I am having my bad days I always go back to that thread and read through it - hoping that if my scan in a few weeks time is good news to share that there because even when it's only small news, good news is good news x
It’s absolutely possible for you to become NED. The drugs we have now are incredible and they are improving all the time. There was an article a couple of months or so back about new discoveries for her2+ breast cancer - which my consultant is genuinely excited about, as it has positive implications for breast cancer treatment more broadly (for me for instance too). See here : https://medicalxpress.com/news/2021-12-pembrolizumab-combination-potentially-treatment-her2-positive.html
And
https://www.businesswire.com/news/home/20211209005708/en/ENHERTU®-fam-trastuzumab-deruxtecan-nxki-Additional-Analyses-Further-Reinforce-Ground-breaking-Efficacy-in-Patients-With-HER2-positive-Metastatic-Breast-Cancer
im also really interested in the surrogate piece - it seems like it’s a mountain to climb but we’re used to that given the cancer
I'll definitely have to give those articles a good read But my oncologist said that there are so many new treatments coming out all the time so I'm trying to stay as positive as possible and try to look at this as more of a chronic illness than anything else.
Out of curiosity, with being NED are you still medicated? Do you still have to go in for treatments at all or how does it work? Obviously you don't have to answer if that's quite an intrusive question!
I actually spoke with someone on instagram in America who went down the surrogacy route after she had been NED for a few years, so it isn't unheard of it's just a big/scary decision to make. We froze some embryos before I started chemotherapy which I am very grateful for, so it isn't off the table completely. Me and my boyfriend were only planning on starting to try to have children in a few years so I'm not in any rush to make a decision, and I think when it comes to it, it will probably be a very difficult decision to make x
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