Hello
Has anyone here been referred to Pilgrims for support? My oncologist referred me and i am really struggling with the concept of needing their support. She said at the time, she didnt think i was in need of them but they offered holistic and wellbeing support. i said ok. But then i went on the website and it is very much branded as end of life care.
When the nurse called me for assessment, he said to think of them as similar to Macmillans. He referred me to a counsellor and she scared me by saying that generally people are referred to them when they have 12 months or so to live. However this has not been told to me by the oncologist. I have only just started treatment so no one has given me a time prognosis. But the counsellor did say that sometimes treatment stabilised progression and people were able to benefit from the wellbing aspect and then were discharged until such time as they needed the end of life care.
I suppose i am really struggling to accept the diagnosis as terminal. There are so many stories of people who have been given a year or two but live much longer than that.
What has been your experience of Pilgrims if you were referred to them early in your treatment?
x
