I am due to start abemaciclib with fluevescent injections next week for liver mets. 
I was just wondering if anyone has any long term experience of this drug? I have seen that some people have talked about palbociclib taken over many years, but not so much this drug. I’m getting go the impression this is a newer drug so less long term data???

Thank  you 

  • Hi

    I don't have any experience with abemaciclib to offer but I noticed that your post hadn't had any response yet.

    When I typed 'abemaciclib' into the group's search bar I found these previous posts which mention it. You could have a read through them and respond to any of the posters if you want to ask them any questions. You could try the search bar to look for previous posts on 'fluevescent injections'.

    It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.



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  • Hi KJA 

    I know you posted this a while ago but thought I’d give you my experience on them.

    I was on CDK 4-6 inhibitors from 2019 till recently. I had to reduce my Abemaciclib dose from 150mg to 100mg after a few weeks as I was getting a lot of diarrhoea, I have IBS anyway but I was going a lot more than normal. Just take loperamide if you get it & mention it to your medical provider if it continues for any length of time.

    The Faslodex (Fulvestrant) injections are a bit of pain, not major pain, just annoying. I found it stings a bit for a few days after.

    Didn’t have any major side effects other than that to be honest & it kept my cancer stable for a few years, which is great. 

    Good luck & hope it helped. Let me know if any other questions. 

  • Hi.

    thank you for your reply. Unfortunately, on my 3 month scan there was progression so this drug did not work for me. 

    just looking at other options now.