So scared of distant spread

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Hi ladies, 

I’m 35 and was diagnosed with invasive carcinoma last November, er and pr + her2 negative and tumor was 1.3cm. 
Has anyone had the same sort of situation and you are always worrying about it turning metastatic? I had a CT scan after I had my lumpectomy and that came back clear but the more I read the more I see it can come back in the lungs, liver and bones years later and they don’t do tests for that! You just have to go off your symptoms which scares the life out of me! 

I’ve heard feeling like this is quite normal but I’m only half way through chemo and I’m feeling so anxious about it already! They didn’t find any LVI on the tumor which was good but it was in two of my sentinel nodes they removed and had extra capsular spread where the cells pushed slightly beyond the lymph nodes. That was the worst part of my actual diagnosis when they said it was also found in two lymph nodes as my whole treatment plan changed. 
thank you 

  • Hi  

    I am sorry you are going through treatment and worrying about your cancer metastasising. I think it’s a normal worry. The good news is that your CT scan didn’t show any evidence of spread. The chemo is intended to reduce risk by mopping up any stray cancer cells. I am guessing you will also have radiotherapy and endocrine treatment to reduce the risk of recurrence. No one can promise you it won’t come back but it sounds like a lot is being done to reduce the risk. I hope as time passes you will be able to sit more comfortably with this. 

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  • Hi i understand completley and i could have written this myself i am currently having chemo for the same cancer as urs and it spread to my lymph nodes to , are u having chemo ?. It really is quite worrying to think what could happen but everything is being done that can be done for now and if we hadnt have found the cancer and gone to get it checked who knows where we would be , the good thing is that its treatable now and focusing on getting well is better than focusing on something we cant control .