Hello all,
I am new to the site, though not new to the DCIS journey, and not sure how to post things.
I am 63 and have just been diagnosed with a recurrence of DCIS, only small at 10mm, but as 8 years ago I had 2 lumpectomies and radiotherapy and I have ‘complicated breasts’ full of benign tumours which makes identifying the nasties difficult I am told mastectomy would be standard practice. Which feels like a sledgehammer to crack a nut but hey ho, I do want to live! My previous radiotherapy also means immediate reconstruction is out of the question and I cannot face the thought of more surgery and hospital down the line.
So for a number of reasons I feel I would like to have surgery all in one go so I can just recover, get my strength back, and get on with life – not least because my partner has just been diagnosed with a recurrence of cancer and is likely facing complex surgery and a painful convalescence and I hope to be able to support him. (He got his bad news call from his consultant as we were sitting waiting for my appt with the consultant to discuss my options}.
I am looking at going flat but am experiencing a level of horror about being lop sided – I have a small frame and wear at DD cup, and I cannot imagine ever feeling comfortable with the lack of symmetry, or imagine wearing a prosthesis on one side. So I am considering double mastectomy hopefully at the same time to get everything over and done with. I would so love not to have any more worries about mammograms, DCIS etc and be free of this disease. I also I feel I would adjust to being flat if I was balanced on both sides.
However my consultant has warned me that double mastectomy has issues of its own, apart from the obvious extra risks of extra surgery, and some people who have taken this path have regrets. She mentioned that if ever wanting to wear a bra it will ride up and be difficult, amongst other things. She suggested I could consider a reduction on the other side instead.
I would be so very grateful for any thoughts, advice, feelings, experiences, tips from anyone who has been through these decisions, single, double, or single with reduction, and feels they could share.
Thanks, and best wishes to everyone on their journey.
I feel your angst as I was also told I had complex breasts and had a right side mastectomy (both breasts had cysts, adenomas, fat deposits and goodness knows what). I kept thinking that maybe I should have asked about the option of a double (cancer only found on the right side but left also 'complex). In terms of recovery, I'm glad that it was only the one as it took a couple of months before I could sleep on that side again and recovery was fairly quick for me (currently on chemo but the scar and healing process from the op were quick). I have a prosthetic but don't wear it. It's sat in the cupboard for special occasions and I personally don't mind being wonky - its a bit of a survivors 2 fingers to cancer for me. I'm only an A cup though so not as big a change! Not sure if that helps at all from a fellow complex breast buddy. Xx
Yes, thanks so much for posting, really helpful. I love the 2 fingers to cancer! Once I make my decisions and get to the other side I hope to feel as empowered as you. Fantastic complex woman. Xx
Hi,
I had a double mastectomy last year with flat closure, because I carry Palb2 gene. It was a tough decision, but like you the thought of more surgeries with reconstruction just didn’t appeal to me! I haven’t regretted the decision at all, obviously I have some sad days but mostly don’t even think about it. I don’t wear false ones either , I have some but haven’t felt the need to wear them . It’s a tough decision, you will get there and it will be right for you xx
Victoria wife
Thank you so much for your words. This is so helpful and encouraging. Love and respect, especially on sad days. Xx
I had a double mastectomy with flat closure in 2023 after having cancer and discovering a BRCA1 mutation. I felt similar to you in not wanting further operations and I wasn't very keen on implants, and can say I am very happy with my decision. My body is different, but I embrace it and feel happy in my skin and honestly feel relieved to be liberated of the things that tried to kill me! I've posted it before, but a charity called BRCA chat has a mastectomy gallery where you can see results of different types of surgery, and they also have stories from women. Personally I found this very useful to see different types of results and it helped me to visualise the options when making my decision. There's no one size fits all option, just follow your instinct on what feels best for you! Wishing you the best of luck on your journey ahead xx
Thanks so much, I have just had a quick look at the site and it is exactly the kind of help I need trying to make the most informed choice and be as prepared as I can rather, than just gut feelings made in a state of shock. So thank you for your your wisdom and advice.and all very best to you. xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007