First treatment side effects

Good to know, thank you

Hi there.

i have completed 5cycles (last one EC WIll be on Monday). I have done the cold cap throughout and am so pleased. I have only lost about 40% of my hair, and already the new hair is starting to appear I have not had to use any head covering, which has been great.

. I take 2 paracetamol 30 minutes before my appointment and then 2 paracetamol every 4hrs for a couple of days (stops the headache). I had very few side effects during these cycles. I did feel a little fatigued during the days when I had my injections,

after my first cycle , and following my meeting with my oncologist, I told her all side effects that I had encountered, and she ‘tweaked’ the dosage for the next cycles (made a huge improvement). Write everything down, and on what days you feel not so good and tell your consultant.

try and persevere with the cold cap if you can. I found that my following treatments were easy (I think it was because I knew what to expect). Have something to read or listen to, or watch, while the cap is cooling, I found after about 15mins there was no discomfort at all (don’t forget your paracetamol).

wishing you well

Sorry - above post should have read

i have had 3 EC cycles, and 2 Docatexal, and am having my third (and last) one on Monday.
in addition, I took paracetamol most days and it helped a lot 

I seem to be so spaced out on EC that I aren't even drive until around day 8.  I have no idea if this is even normal, it's difficult communicating with the oncology team

I am sorry to hear that you are having a difficult time.

i have used the oncology help line when i wanted some advice. The team there are fantastic and will help you. Discuss your problems with them. And they can prescribe any medication that could help you.

my consultant told me that if I ever needed any help or advice to immediately telephone them (they are there to help us). 

hope this helps

Hi, it sounds like we’re on the same timeline, I had my 1st EC 6 days ago. I’ve also have had fatigue, nausea and headaches and found that for the first 2 days bright lights were really painful. Eating little and often helped, even at night when the nausea woke me up. I drank loads of water too to flush the toxins out asap, I definitely felt less ‘toxic’ from day 5.

I totally empathise with that feeling of being spaced out…I found it was worst in evening.  Hope you feel better soon, lots of water and herbal tea has helped me x