In Jan 21, diagnosed with stage 3 aggressive er+ cancer. Had mastectomy,+ removal of 3 lymphs which showed cancer, had 1/2 hardcore chemo plus Letrozole. The latter was dire in term of side effects so stopped it, some symptoms got worse, after investigation my cancer had progressed to the next set of lymphs, upon removal my cancer status was now HER2+, also I managed have non related bladder cancer treated successfully. Had lymph removal/ hardcore chemo followed by 14 cycles of Kadcyla, plus radiation under collarbone. Finished Kadcyla oct 24. Since start of June have had intermittent lft sided headaches which in last 3 weeks have become permanent emanating from base of skull, under whch I have found a petis pois sized movable lump, I feel sick, I'm sleeping more, night sweats have returned, I've lost weight despite making myself eat, my balance and gait is off kilter at times, and latterly I can clearly see info, but when verbalised is not what I see. I am due to see a consultant tomorrow after seeing a breast clinic nurse Monday.
Has anyone else been in a similar position and found themselves happily relieved that its not the worst outcome? All responses good or bad would be welcome at this time xx
