Hi,
I had ER+ HER2- stage 2 grade 2 invasive cancer diagnosed in September 2023. I had a lumpectomy with sentinel lymph node biopsy. At my results 1 node was positive and they did not achieve clear margins, so 3 weeks later I had a mastectomy and node clearance.
My Oncotype came back as 9 so no chemo, radiotherapy followed and I finished active treatment in March 2024. I was put on Letrozole for 10 years
Fast forward to December 2025 and I visited the doctor with hip pain, sent for an X-ray and came back as arthritis. The pain got progressively worse in the spring so I pushed for a CT scan, and found out I have bone mets. A visit to the breast clinic confirmed it last Wednesday.
i am now booked in for a full body CT on Thursday and am still waiting for the appointment to come through for a nuclear bone scan.
i don’t know what I’m asking really, although if anyone has trod the same path it would be good to hear what may be next for me.
I’m psyching myself up to tell my daughters (both in their 30s) and seem to spend all my time convincing my husband I’m not going anywhere but am I just fooling myself?
Sorry, that was a long one but I didn’t expect to be here so soon 
Hi robbann
I am one of the MacMillan Community Champions. I have been living with secondary breast cancer since 2022 although mine is triple negative and it spread to my liver. I am sorry you have bone mets. A secondary diagnosis is a huge shock, even though you suspected something was wrong. The waiting for further tests and results to find out the extent of it is also awful. The good news is there are lots of treatments for secondary breast cancer, particularly your type. Many people live full lives with minimal treatment side effects. So no, you are not fooling yourself. Try to think of it as a chronic condition to live with.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
