Worried about oncotype score: 47 = 50% chance of recurrence?

  • 8 replies
  • 289 subscribers
  • 588 views

Hi Wave

I recently found out I need x 3 rounds of EC and x 3 rounds of Docetaxel followed by 3/4 weeks radio. My worry is my oncotype score came back as 47!!! This has got my mind jumping hoops.

Does this mean I have almost a 50% chance of recurrence? I am so worried.

Anyone had this experience?

Thanks in advance for any advice. Blush

  • Your Oncologist should be able to tell you the percentage chance of recurrence. My score was 28 which I was told meant I had a 17% chance of recurrence.  I have just finished 6 rounds of EC. Not pleasant but doable.  Wishing you all the best. 

  • Thank you Wendyt, that alone makes me feel so much better. I thought your onco (47) was your percentage. X

  • Hi

    My oncotype is 45 - so very similar to you.

    I think the risk of recurrence is also reduced by dense dose chemotherapy and the follow on treatments.  Hopefully Ribocyclin will be approved for node negative high risk people

    x

  • My oncotype was 26 and said on it a 12% risk of distant reoccurrence and I’d benefit from chemo. When we asked the oncologist what that risk would reduce to with chemo she said they didn’t have that data which seems odd and is a bit of a worry as could be making myself ill for nothing! Can only hope it will have an effect together with the various drugs I may take afterwards. 

    I’m trying not to think about recurrence and just taking whatever treatment they offer but it is interesting to hear what scores other people got. For clarity I had HER2 negative, estrogen positive. It was grade 3. I had 1 out of 3 sentinel nodes affected so had to have axillary node clearance which revealed all 30 odd nodes were clear. 

  • Can I ask.. Has your oncologist recommended hormone therapy as well? Or have you been told its not necessary? 

  • Ihi sparkles, I had ER positive, PR negative & HER2  negative. I also had 7 nodes removed with 6 clear and SLN had 0.7 micromets (tiny microscopic cells)

    I am due to start chemo tomorrow , x 3 EC, x3 Docetaxel followed by radio x

  • Hi, yes I have to have to have 6 rounds of chemo , radio for 3/4 weeks then letzorale for 5 years x

  • Hi Dhill. That’s interesting. Mine was exactly the same! PR negative also. 

    My treatment plan was 9 weekly sessions of paclitaxal and carboplatin (carboplatin added because I am brca2 positive) followed by 3 three weekly sessions of EC. I have completed 10 sessions and have 2 left. They have mentioned I will need radiotherapy also and have said I am eligible for abemaclib. And maybe something else subject to ovary suppression as apparently some drugs are more effective post menopause (I am 41 so pre menopausal although chemo has stopped my periods).