Just don’t know what to do…

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I had my paclitaxel and Carboplatin and I had one tube of EC couldn’t have any more as I had an allergic reaction. So went straight to surgery had a lumpectomy, really good clear margins and no spread anywhere else. But I had residual in the lump they took out. Saw my oncologist today to expect to be told about radiotherapy now she wants me to have 3 months of doxorubicin and cyclophosphamide as a preventative treatment as I didn’t have all of the EC. My mental health has hit rock bottom. I said will I lose my hair again and she said yes but you have a wig. She also told me if it comes back in my liver or lungs etc it’s incurable. Was she trying to scare me? I can not do this again I was so so poorly with chemo before. I just don’t know what to do Cry it’s triple negative breast cancer.  I was hoping to have cape but she said I couldn’t because I didn’t complete EC

  • I’m so sorry to read this. This has been my journey and I got sepsi and DRESS due to EC and immunotherapy. Waiting for my surgery then maybe chemo and will be radiotherapy. 
    it’s hard as hell but you’ll get through it and be stronger than ever. There is so much treatment and research all the time. They said same to me about liver ect so let’s hold on the that and get this done! Then we got a long time of making up to do & holidays.

    be kind to yourself you going through so much.

    take care 

  • I had a similar story a couple of weeks ago, thought radiotherapy was the end of treatment to be told I need another 10 months of chemo. At the time I was contemplating declining and letting nature take its course but having got over the initial shock and disappointment I have come to terms with it and will just grin and bear it. I hope you can find yourself in the same position with time. Hugs

  • Daughter was told she needed a further 14 cycles (10 months) after chemo, surgery and radiotherapy. She was very dismayed at first but agreed. No denying it was very tough, but she finished 8 weeks ago and scans now say 'no cause for concern'. 

    You'll come to terms with it and get through it. There were different side effects which were cumulative - the final few cycles were very hard, but still nowhere near as bad as EC.

    Very best wishes for successful treatment. Hugs xxx

  • I’ve got to have doxorubicin apparently the same if not worse than EC Cry

    Well done to your daughter and good news for her x