Missed diagnosis

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  • Oh Gemmma,  I read your story and I am at a loss for words as I can only imagine how difficult this is for you.  I know it is hard not to focus on what could have been but it can’t be.  
    There is a lot of research on metastatic breast cancer and women are living longer and longer.  Doctors can give an opinion on how long you have to live but they are wrong so many times and people have defied the odds. I have a dear friend whose daughter has Mets from breast cancer snd she is in treatment and doing well.  There are many women who are on this site that will be able to tell you about their experiences.

    I am sending healing and positive thoughts to you and will keep you in my prayers.  

    Barbara 

  • Hello, I’m so sorry to read this. I’d like to echo the comments from Hopeful Barb. I have a good friend who was diagnosed four months after me. She was treated for primary breast cancer, but she later found out that she was actually stage four, and not stage two when she was first diagnosed. It had already metastasised to her lung before diagnosis, and whilst she was being treated for primary cancer. She is on recently approved immunotherapy, hormone therapy and she was previously on chemo. The good news is that she has responded to the new treatment, and is now ‘no evidence of active disease’, but she of course remains stage four, and has 3 monthly scans. So it is under control at the mo. This doesn’t take away the emotional side of it though, and the shock that she also experienced. However, unlike you, she wasnt in the situation of a missed recall, and I can’t imagine how that feels. I hope someone who truly understands replies soon x.