Dear All, I have been diagnosed with stage 2 lobular cancer; the lump was 13 cm and 10 lymph nodes were also found to be cancerous. I saw my oncologist for the first time last week after having a mastectomy and came away feeling a bit disheartened as he spoke about the fact it was lobular, that it had spread to the lymph nodes and the size there is a high chance it will come back. I am due to start chemo, then radiotherapy and on to medication. Have many of you ladies had a reoccurrence as I felt I was managing fine but after seeing the oncologist I am starting to get quite nervous about my situation and the future. Sending love and healing hugs to you all xxx
Hi Sparkleandshine
Sorry you are here dealing with BC - I can totally understand your fear. Think it's a fine line between medical staff giving us the right information and not scaring the wits out of us, but I really do wish they realised the impact their words have on us. None of us know who will definitely get a recurrence. On this forum there are ladies who have had no lymph node involvement who have become metastatic (including a friend of mine), and people with many nodes involved who have had extensive treatment who never get a recurrence at all. Treatment is really good nowadays and only getting better. I had mixed ductal/lobular with node involvement and just hope that the extensive treatment I was given will keep it at bay for a very long time. Currently nearly three years out. When I have really down days, I google latest breast cancer research/news and it really gives me hope. Hoping someone further down the line can offer you some more reassurance and good luck with your treatment. Sending hugs x
Hi there I was diagnosed with lobular bc in December and had a mastectomy 2 weeks ago. I am waiting for my pathology results and treatment plan. There is a good fb page lobular ladies. I wouldnt worry too much about reoccurrence. If it does return In 10-15 years then by then imagine the treatment options. Stay positive that’s all we can do. What’s you’re treatment plan x
Thank you so much for your reply, it is very reassuring. Sending love and healing hugs xxx
Thank you so much for your reply, hope you get your treatment plan soon, sending lots of love and healing hugs xxx
Keep positive I know it’s hard at times. I seem to get blindsided by it!
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