Lobular Cancer

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Dear All, I have been diagnosed with stage 2 lobular cancer; the lump was 13 cm and 10 lymph nodes were also found to be cancerous. I saw my oncologist for the first time last week after having a mastectomy and came away feeling a bit disheartened as he spoke about the fact it was lobular, that it had spread to the lymph nodes and the size there is a high chance it will come back. I am due to start chemo, then radiotherapy and on to medication. Have many of you ladies had a reoccurrence as I felt I was managing fine but after seeing the oncologist I am starting to get quite nervous about my situation and the future. Sending love and healing hugs to you all xxx

  • Hi Sparkleandshine

    Sorry you are here dealing with BC - I can totally understand your fear.  Think it's a fine line between medical staff giving us the right information and not scaring the wits out of us, but I really do wish they realised the impact their words have on us.  None of us know who will definitely get a recurrence.  On this forum there are ladies who have had no lymph node involvement who have become metastatic (including a friend of mine), and people with many nodes involved who have had extensive treatment who never get a recurrence at all.  Treatment is really good nowadays and only getting better.  I had mixed ductal/lobular with node involvement and just hope that the extensive treatment I was given will keep it at bay for a very long time.  Currently nearly three years out.  When I have really down days, I google latest breast cancer research/news and it really gives me hope.  Hoping someone further down the line can offer you some more reassurance and good luck with your treatment.  Sending hugs x

  • Hi there I was diagnosed with lobular bc in December and had a mastectomy 2 weeks ago. I am waiting for my pathology results and treatment plan. There is a good fb page lobular ladies. I wouldnt worry too much about reoccurrence. If it does return In 10-15 years then by then imagine the treatment options. Stay positive that’s all we can do. What’s you’re treatment plan x

  • Sorry just read your treatment plan. Mine is 51cm lobular and in 2 nodes.

  • Thank you so much for your reply, it is very reassuring. Sending love and healing hugs xxx

  • Thank you so much for your reply, hope you get your treatment plan soon, sending lots of love and healing hugs xxx

  • Keep positive I know it’s hard at times. I seem to get blindsided by it!