PLCIS

Hi Linenmom

Sorry not to have replied but I think you’ve stumped some of us - We’re not ignoring your message!

I’m not at all familiar with PLCIS. 

Hopefully someone else looking in is!

Best wishes

Thanks for your reply.  It is telling how rare this is that so many views but only one inconclusive response.  I was told it was common but even two GP friends have had to look it up… doesn’t fill me with confidence that enough research has been done relating to treatment.

Hi Linenmomd9fbcc I had lobular breast cancer but not Pleomorphic lobular cancer.  It is a sneaky one and it does have a higher risk or coming back fingers crossed it never does.  Let us know how you get on x

Lee x

Hello!!

So I was initially diagnosed with just pleomorphic LCIS but after surgery the pathology report found invasive aswell! But mine was a large area so they couldn't biopsy the whole area but anyway when we thought it was only the PLCIS it's treated like DCIS very early stage, i was going to have a mastectomy and that was going to be it, no radiotherapy. As I understood PLCIS has a higher chance of turning into inasive (higher than LCIS) but it could also not ever turn (mine obviously had)!!  So hopefully all you will need is the mastectomy as you've caught it very early!!! Xxx

Thank you Belle, I hope you are well now.  Just trying to get my head round the idea of a mastectomy which I find quite terrifying. You sound like a very brave woman! Xx

Sorry I realise in my reply I have been very blase about a mastectomy, yes it is a massive thing that nobody wants to go through and it does take ages to get your head round and believing that it is really going to happen! I had immediate reconstruction so I suppose for me I didn't ever really go through the feelings of just having the mastectomy. But in terms of the surgery and after I would say it feels a lot more daunting than it is most hospitals seem to have really could pre and post surgery care and lots of informative info and appts. xx