TNBC

Hi :) I am glad you are not having too many side effects. I was diagnosed recently, still waiting for the scans and staging . Don't know what to expect and I feel like its growing really fast , I keep requesting for faster tests , some worked. Soryy just venting.

Did you follow any diet in particular for TNBC ?

Good morning.  I was diagnosed in June but didn’t have surgery until August.  Like you I was worried that it was spreading while I waited.  I needn’t have worried as they removed the tumour successfully.  They take a large area around it to test for cancer cells.  Mine was all clear and hadn’t spread to lymph nodes.  I’m now having preventative chemo.  The first one I had as too strong so they’ve now now changed it for a milder one which is much better so far.  Your oncologist will discuss any treatments they think will be best for you.  When I see mine I always write any questions or worries I want to discuss.  No I didn’t follow a particular diet but I do eat plenty of fruit and veg as I think that’s important.  Good luck and try to stay positive.  The treatments for breast cancer are brilliant. 

Just to add about my own TNBC diagnosis. I am going through two stages of chemo first (carboplatin, paclitaxel (weekly) and prembrolizumab first 3 months which started 14 Nov then every 2-3 weeks Esecond 3 months). I will have a test (ultrasound?)mid Feb to see how far the tumour in my left breast has shrunk. Surgery/lumpectomy is then planned after EC, followed by Radiotherapy. Big hugs to eryone one, hope you have a lovely Christmas break.

Good luck to you for your treatment.  I couldn’t take EC which is why I’m having Paxitaxel.  Have had 2 treatments and so far minor side effects and my hair is growing back which is a bonus. Only 10 more to go! 

Thank you for replying , it means a lot rt now .  Mine has actually reached all the lymph nodes till the collar bone so.. thank you for the suggestions . I have been eating a lot of fruits and veggies phew doing something rt . Yes I am trying to be more positive especially for my 3 children . Thank you typist and good luck to you too. 

Hi Suz89

Hope you had a lovely Xmas.  Your treatment plan is the same as mine.  I started on 15 Nov.  I had a bad reaction to Paclitaxel on the first one as my blood pressure and oxygen levels dropped very low so they had to stop treatment.  I am now on Abraxane and apart from a few side effects I'm managing ok.  I overheard 2 ladies chatting last week about EC which I will be starting in Feb for 12 weeks 4 cycles every 3 weeks.  They said EC was really tough which I'm dreading.  How are doing so far x

Hi BAC52,

I am doing ok, so sorry to hear about your experience with Paclitaxel. That must’ve been quite frightening right at the beginning. I only just started the 2nd cycle last week as my liver enzyme results weren’t were they should be. I had a 3 week break.  The nurses at the chemosuite are doing a fantastic job so feeling very grateful. The white blood cell injections I am still struggling with though. I am also not sure how much benefit I will derive from the cold cap as I have lost about 2/3rds of my hair. Will try to stick it out as long as possible. My appetite hasnt suffered yet. I am also not looking forward to the EC treatment, sounds like it is going to be bit more challenging. 

Hi Suz89

Sorry to hear you've had problems and hope you will be ok going forward.  It's really tough isn't it and our bodies react differently.  As you say the chemo nurses are just amazing.  We are so lucky to have them look after us.  We are in very safe hands.  I start my 3rd cycle on NYE.  I have the 3 drugs Abraxane, Pembro and Carboplatin.  I usually feel a bit rough around day 3.  I didn't go for the cold cap as I have quite fine hair and tbh I couldn't face it.  I have lost most of it now so it's turban hats and a wig. On the plus side I am 72 and my family say I look much younger wearing my wig! Wishing you well for your next treatment x