Grade 1 lobular

Hi Leanne13, a very warm welcome to the forum. It's very frustrating to have treatment delayed, but it's not uncommon and typically a few weeks doesn’t make a huge difference so I'd try not to worry about it.  Whilst my surgery went to plan, my radiotherapy was delayed by about 4-6 weeks as I had a swelling that needed to reduce, so I think these things do just happen.

I hope you're feeling better now and that your chest infection has improved and whilst it will be difficult, I hope you can relax over the holidays. If you do need any extra support at any time, you can pop back in here and some of the lovely folks will be around to help, or you can call the MacMillan chat line on 0800 808 0000 if you need any advice or just to talk things through. Best wishes 

Hi irishgirl16, thank you for replying. 
I have been started on tamoxifen early so hopefully that will help stop any growth in the meantime. 
It’s seems like everything just takes forever from diagnosis to treatment. The waiting is the worst. 

Hey Leanne! Im only just diagnosed myself with Lobular grade 2 and havent come across many others mentioning this type so thoughts id say hello! Hope you are feeling okay? How is it going on Tamoxifen? Its been mentioned to me but ive only had my diagnosis 2 days and they hadnt decided who my consultant would even be so i know literally nothing! Sending love, Sarah x

Hi I was diagnosed with grade 2 lobular last week. My world has been turned upside down. I’ve got mastectomy books for 24 jan. Apparently lobular cancer is a well behaved one. So I expect that’s why there isn’t an immediate urgency with it. I’m not on tamoxifen yet. Waiting for ct scan 

I agree the waiting js so hard. It’s like torture especially over Xmas 

Hi girls, thanks for replying. 
How old are you both if you don’t mind me asking? 
The tamoxifen is ok. Been getting headaches sometimes, hot flushes too but not sure if that’s just my anxiety playing up. I wasn’t meant to start that until after surgery/radiotherapy but as a precaution I’m on it early.  
The waiting is awful. But I have got my surgery through for 13th Jan now. I hope you are both ok? It’s a lot to take in isn’t it. So much information. I felt like I processed it pretty well but as time goes on I’m actually really scared. 

Hi Leanne it is scary. Im 49, how old are you? Not too much longer until your op now. 

I have just turned 40. Not the best birthdays I have to say haha. Have they spoke to you about gene testing? 

No they haven’t. What is it please?  I’ve also emailed my bcn to ask if I can start tamoxifen whilst waiting for my op

Have you had your ki 67 result? This shows how fast the cells are multiplying. It’s from 1-100. Mine was 1. So v slow but still managed  to get to my lymph nodes. I’m grade 2.