Grade 1 lobular

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Hi everyone, 

It’s my first time on here and I am just wondering if anyone else had to have their surgery delayed? 
I got diagnosed in October and was meant to have a lumpectomy early December. I went in for it but was too unwell with a chest infection. So I am assuming it will be January (I’m hoping). I have been started on Tamoxifen in the meantime. 
I am really scared that by it being delayed it could spread somewhere else. 

  • It’s genetic testing to find out if you have the BRCA gene. It’s for younger people who get breast cancer. If mines positive then I will need a double mastectomy and family will need testing too. 
    I wouldn’t worry about tamoxifen atm. I was diagnosed October and obviously will be having surgery 3 months after this. Think that’s why I’m on it now. Whereas you have just been diagnosed and getting surgery pretty quickly. 

  • No I haven’t had that. Just said from the biopsy taken of growth that it’s growing slowly. They haven’t done any lymph nodes. Just said they will remove some during surgery to test. 

  • thanks I’ll mention it to my bcn. Happy to keep in touch as we’ve got the same type. Just want to get this op done and see what’s next. Dr said radiotherapy but will be decided after op 

  • Yea ofcourse that would be good. 
    Yea same here, definitely radiotherapy and hormone therapy but not sure on chemo. Depends what biopsy result is once all out. How big is yours? Mine is around 5cm but I’m only having a lumpectomy. 

  • Hi mine is 5cm in total but in two areas of the same quadrant. So I need a full mastectomy as I only have small boobs (b cup) so a lumpectomy wasn’t an option. As mine is also in lymph nodes I need a ct scan

  • Did they just see it was in lymph nodes from mri? 
    Oh yea that will be it then. I’m a D cup. Will you be getting a reconstruction? 

  • They did a biopsy at ultrasound,  I can’t get an instant reconstruction but I can affer radiotherapy. How about you? I am so worried today. My ct scan is on 2 Jan then results the following week. 

  • Oh I wonder why they didn’t biopsy my lymph nodes. Think everywhere does things differently. 
    Try not to worry. I know that’s easier said than done. I do hope your ct scan is all clear and a good result. 

  • Thanks Leanne. Maybe yours looked clear. They said mine looked reactive. I want to roll on 6 months and for this nightmare to be over x

  • Yes same here. Just have to be strong and get through it. We can fight this horrible thing. X