Starting treatment fears

Hi Typist, I started my chemotherapy in March,  3 cycles of EC and 4 cycles of docetaxel. I too was really nervous about starting chemo, but actually had minimal side effects, apart from the hair loss. I found that the time at the hospital depended on how busy they were on the day. The chemo itself doesn't take too long to go in. Extra time is to set you up, also time afterwards to sort out any meds you might need. I decided to keep as positive as possible. I cut out alcohol and made sure I was eating healthily. I also started daily 2 1/2 mile walks with hubby, prior to starting chemo, which we continued throughout. Good luck for tomorrow, I hope all goes well. Xx

Hello typist, 

Hope you are okay. 

EC infusions are quick I have found. Much quicker than pac and carbo that I was on prior. I was nervous as well starting a new one but it hasn’t been too bad.

If it is like mine, the nurse sits with you while they give you the E part. It is in syringes and red in colour - it looks scary but don’t be afraid. Depending on the size of syringe and then the dose depends how many syringes there are. First time I had 3, the second time I had 2. So usually takes about 15-20 mins. 
Now the C part is done via the automated machine thing (I don’t know what they’re called sorry) and that takes about the same time 15-20 mins. 

You will get pre meds as well. Like daisy has advised, it will depend how busy the chemo nurses are and whether you are going to cold cap. 

This is how mine is administered and I know someone else who’s is administered the same in a different area. 

Me and others have found that EC knocks our systems really low. I have personally picked up an infection both times but don’t let this scare you - I was unwell for about a week but the other two weeks I have been okay. 

You get given a number to call if you do become unwell or have any side effects. There are lots of different medications to help with these. 

I have also had hair loss, insomnia and constipation. 

Everyone is different though. Take it one day at a time. 

I hope this has helped, good luck xx

Hi Daisy.  Thank you so much that has put my mind at rest x

Thank you Missy, that has help me. 

Good luck for tomorrow. Send an update on how you got on and felt etc… if you feel like it of course  

Stay positive xx

Hi Missy219,

I had my first treatment on Friday and have the same problems as you had but also have tingling in my feet and they feel hot and achy did you have this at all? Phoned the helpline this morning but she just said one of the side effects and keep an eye on it doesn't help with the insomnia as wel xx

Hi Missy. Have you been able to get anything for the insomnia?  Does it get better as treatment goes on? 

Hi Gurn, 

Yes tingling in feet is another one unfortunately I have experienced. It’s not too bad and manageable but feels really weird to walk on. 
They’ve never felt hot though - just achey. 

To be honest, I have never mentioned the tingling feet because I read it was a side effect and there is nothing they can do or give I don’t think? 

How are you managing otherwise? 
What is your treatment plan?xx

Hi Typist, 

What is your treatment plan? 
It isn't just the chemo which is causing the insomnia - I get prescribed steroids (I am guessing you will too) and these can cause insomnia. 
This is along with my mental health. Sometimes it’s not great, unfortunately I have had thoughts about all sorts - stemming from my diagnosis of TNBC. 

The specialist nurse did prescribe me zopliclone - only a weeks worth, as I felt like I hadn’t slept for days. I have only ever taken one tablet because of how it made me feel after (spaced out). 

I am just trying to sleep when needed and accepted this insomnia probably isn’t going to go away until I’ve finished treatment at least xx

Hi Missy219,

I am just having trouble sleeping ,took the steroids for 3 days , Thurs, Fri, Sat and they seem to think once they are out of my system I should sleep better until I have next treatment on the 15th November . I hate feeling like this, knew it wouldn't be easy but lack of sleep is horrible .Big hugs x