Numbness / tingling hands and feet post chemotherapy

Hi sorry to hear about your symptoms I had terrible pins and needles when I was on EC and Docetaxel and for a long time afterwards it's been two years now and I'm glad to say mine has  subsided . I had alot of side effects but everyone is different it does depend on underlying conditions and medications as well. But I did have a reaction twice with EC I had a very spaced out head like I'd drank a bottle of vodka and had a massive hangover I ended up in hospital then they tried again but it definitely was a reaction as they tried docetaxel and I reacted in the chair so I had reversal drugs to get me through and I was completely different! so what I thought was normal wasn't best to contact your team to be safe I think.

All the best 

Julie 

Do make sure you share your reactions with your chemo nurses. They were concerned when I told them about my footpain incase it developed into neuropathy. 4 years on I have a numbness in the soles of my right foot. Xx

Keep being told it will go 

Sorry you are experiencing this. Please do tell oncologist at your next appointment.. Daughter is coming to the end of 18 months of treatment - chemo, 3 surgeries, radiotherapy and finally a further 14 chemo cycles. Neuropathy has been a real problem this time. She was put on gabapentin which didn't seem to make any difference at first, but you have to slowly build up to a dosage which will have an impact - and it did. Don't be put off, I hope oncologist will help. Very best wishes xxx

Hi - I have the same problem, started just before EC chemo and got slightly worse subsequently.

I have started on amitriptyline as my walking was becoming difficult and my finger tips have improved and my feet now vary as opposed to being numb all the time - might be worth discussing with your med team.

I have really numb feet, nobody told me this could happen, they just mentioned tingling and never said it could be permanent.  It is nearly a year since I finished chemo and it is not getting any better.  I have mentioned it to the nurses and oncologist but they just say it might improve.  There has never been any mention of any kind of treatment so I am interested to see that the threads below mentioning drugs that might help.  I am seeing the oncologist soon and will ask.

My neuropathy in my fingertips was very mild when I finished paclitaxel chemotherapy, but it is getting worse and is in my feet as well now.  I finished chemo 7 weeks ago.  When will it stop getting worse? 

I actually went to my GP and got medication for peripheral neuropathy - amitriptyline seems to be helping but slowly and there are other drugs too - worth a try- hope it goes okay for you.

Hi

I have just finished 3 rounds of ec.

Due to start docetaxel next for 3 rounds.

I've not had any problems so far with pins/needles etc, but my oncologist did say to me if i get any report it straight away as they may have to change the dosage. He also informed me that the damage can be a permanent thing.

I must admit I'm quite apprehensive about the next 3 rounds of chemotherapy, I also have to take big doses of steroids with it.

My last ec i really struggled, it wrecked me for 7 days, it's been so hard on my stomach and chemo head was truly awful for me. 

• I seem to have developed this dry cough, I'm wondering if this is chemotherapy related. Does anyone else have this or any information. I did mention it but they seemed to have brushed it off a bit for now.

I have found the Paclitaxel a lot easier than the EC with regard to the brain fog.  Feel a lot more like myself.   

Yes I too have had a dry persistent cough and also felt a bit breathless, not sure whether iit was caused by the EC as I had started the Paclitaxel when it developed and I had a rotten cold when on EC so I was coughing then too (but more so) I mentioned it to my oncologist and she listened to my chest and it was clear so nothing to worry about.

Numb toes and pins and needles again had it checked and was warned this will probably get worse before it gets better and to make sure I keep walking. 4 rounds of EC completed, 2 of Paclitaxel and 1 of Nab-Paciltaxel (as allergic to Paclitaxel) and 1 Nab-Paciltaxel to go!