Triple negative breast cancer

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I had a mastectomy in September I had my results yesterday I had stage 3 45mm lump and 3 lymph nodes removed all come back clear my treatment plan is chemotherapy and radiotherapy but I don’t want chemo has anyone declined chemo with triple negative breast cancer seeing oncologist Monday 21st October any advice welcome many thanks 

  • Hi Tasha2010

    While it's completely up to you whether you have chemo or not I would think long and hard about it as chemo is our only line of defence against Triple Negative breast cancer.  While I won't say chemo is easy it is doable.  You will be given medications to help counteract any side effects that you way have. You could give chemo a try and if you find it too much for you you could ask them to stop giving it to you..

    Wishing you the best of luck with everything whatever you decide to do.

    Best wishes

    Daisy53

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  • Like Daisy I would advise chemo as TNBC cannot be treated in any other way. I had a double mastectomy with breast reconstruction.  No radiotherapy but chemotherapy.

    All the best whatever you choose

    ricki
  • Thank you I will listen to my oncologist on Monday I decide from there x

  • thank you for the advice it’s very much appreciated many thanks I update you all x

  • Hi Tasha2010

    I was diagnosed grade2 TNBC, clear lymph nodes, but wasn’t offered chemo which worried me a bit, even although I really didn’t want chemo. I also had high grade DCIS in the same breast. They found the invasive part after the mastectomy but it was very small - 3.5mm. I did have radiotherapy. I fully understand your concerns and suggest you chat it through with the oncologist. I hope it goes well.

  • Do you mean grade 3 rather than stage 3? Grade is the extent to which the cells differ from normal ones, and stage is how far it has spread. I think if it’s grade 3 and of that size, your oncologist is likely to strongly recommend chemo. Were there any other issues from your pathology (eg LVI or VI) that would also increase the risk? Clearly it’s your choice to make but please ask the oncologist to take you through the rationale for their recommendation. If you do have chemo, it’s a short period of your life and certainly for me it was quite doable. Of course chemo isn’t guaranteed to prevent recurrence or metastasis. Also worth asking whether you are eligible for immunotherapy.