Stopping Chemotherapy, haven’t got it in me

Hi feel for you. Talk to chemo nurses. Ask if a reduction in chemo dose would be possible. I think I had 80% and although tired coped ok

Big hug x

Hi 

Thanks, it’s not the chemotherapy as such, well it is! The chemotherapy is stopping from getting any treatment for my back due to the risk of infection. I’m trying to rest because of the chemotherapy but that’s no good for sciatica , I’m just going round in circles . I will chat to the nurses tomorrow. A dose reduction would at least help with the fatigue . Just can’t see a way through this.Thanks for your response xx

Just a thought but if you have a Maggie or Macmillan centre ask if they have any therapy sessions that might help. I had acupuncture. I was given 6 sessions. I would say osteopath but they might not want to treat you when you have chemo. I had regular sessions pre cancer but he stopped them while I was being treated. But maybe someone who was especially trained to treat chemo patients. I had a lovely specialist massage during treatment. 

Do feel for you - very misery making when you have bad pain. Xxx

Hi

i will definitely look into that tomorrow. I’ve heard acupuncture can be of some benefit. I’ve started seeing a physiotherapist once a week who specialises in sciatica.’who gives sciatic nerve massage,’and exercises to follow at home,haven’t checked this is ok,‘but at this point I’m passed caring. I’m also still asking the question about stopping early by having 5 infusions instead of 6. I still have a double mastectomy to go and would not be able to have this until this is sorted as I can’t lay on my back . Thanks for your support and advice ,‘I feel very alone and it’s very welcome right now. I will look into the maggies centres aswell ,! Thank you so so much x

So sorry to read this. I second all these great suggestions, anything you can do to try and complete your treatment. I had chemo before surgery and it really improved my surgical results but I appreciate that feels like the other side of the mountain right now.

Have you looked at reflexology? A really skilled practicioner can help with a manner of things. I had sciatica whilst pregnant and I do think it helped. Also increased pain management? Could that help you get more mobile? Oromorph or tramidol can both be given during chemo I’m sure. 

you’re not alone x 

Thank you, I’m talking to the gp on Wednesday to look at increasing the pain relief I’m already taking., and will asking him to try and hurry the pain clinic. Actually my sister in law does reflexology so I can ask her! Does feel like I’m getting pushed from pillar to post with no solutions.  The double mastectomy is because I carry the Palb2 gene, I’ve already had a lumpectomy and found this out after.  We have private health care and we are asking if I can finish my treatment with this . At least I could be more comfortable during the chemotherapy they can come to your house ,called today and seems like it won’t be too much of a problem Just too much going on while trying to cope with the side effects of this chemotherapy which has knocked me for six. I’ve received relatively good care up until now, Feels like I’m being dismissed because of the pain I’m in, with little empathy. Still will have to discussion with the oncologist about stopping early .  Thanks for your kind advice and support greatly received xxx

I am lucky enough to have private healthcare too and whilst the treatment plan is exactly the same, I find they just have more resources and staff to be able to give me more time. Which equates to feeling more personally cared for. The NHS is amazing but If you have access to it, it could really help ease some of the burden for you. X

Hi,

Thanks, I’m trying today to swap care over to our Private Healthcare, like you said I think it may just help a little . I stuck with the NHS, as at first they were brilliant, and still are, Thanks for your advice xx