Before surgery ..

  • 25 replies
  • 294 subscribers
  • 1015 views

Just wondering of anyone else hasn't had any scans with their diagnosis?
Got surgery next week...

Thanks

  • The HER2 was negative from the original biopsy. However when the tumour was removed they also sent a sample of that for testing, this then came back positive. A bit of a sting in the tail to say the least, but I have got to get on with it. 

  • I have had 2 x mammogram, 1 x ultrasound and biopsy all on the first appointment.  Since then I have had an MRI and a CT scan. I just can't understand why so many tests. I am sure there must be more cancer all over now, but my next appointment isn't until next Friday. I am convinced it's spread, because why else so many tests. I think if they tell me it's in my lungs, stomach or whatever, I will just refuse any treatment. I am too tired for a big fight and for me I'm not sure it's worth it. You will be fine and it's good that they have just got on with it

  • I'll bet.  Good they tested again.  Hope this is routine and better that you know and get treated for that.  Hope all does well. 

  • It's a difficult time when you don't know much.  I do feel they think you don't need to know so much but for me at least it's more worrying. 

    I hope you get some information soon and that it hasn't spread. Thinking of you.  

  • Mamaogram, tomosythesis mamogram, ultrasound and biopsies. They told me it was cancer. Biopsy results 10 days later confirmed size, type, grade, stage, E, PR and HER2.

    7-9mm, IDC, g2, s1, ER/PR+, HER2-

    No further scans.

    Surgery. Lumpectomy and sentinal node removal. Results 10 days later.

    35mm, IDC and ILC.

    I am now pushing for further scans which they are refusing to do anything until 12 month follow up.

  • Sounds like mine is like yours. Can't have been easier to hear it was bigger than first thought. Are you having further treatment?

    I do find it odd that there isn't more follow up, but i think it's because the job is done.  A close relative had bowel cancer. After surgery and chemo it was very, okay you're done now, off you pop! 

    Good luck with it all.  X

  • Thanks.

    Radiotherapy and hormone therapy. Still waiting for my oncologist appointment. Feel a bit in limbo waiting. I can't arrange anything with family etc until I have a date.

    I didn't take it all in when he gave me the surgery results and my questions were based on ductal not ductal and lobular, so I didn't ask anything about lobular. I knew a bit as id seen it mentioned on here and 2 face book pages, my mum also had lobular.

    He just said see you in 12 months and left. The breast nurse then removed the dressing, he didn't even look at it. I asked the nurse about multifocal, she had to go off and look at my notes to confirm it was both. Left the hospital, went to Tesco for a bit of shopping and a bottle of wine and had a melt down, luckily I was still in the carpark and not in store, I sent hubby in instead.

    Sue x

  • Susie q fingers crossed for a good outcome, hugs Tili x

  • Hi SusiQ

    The reason for so many tests is to find out as much information about you cancer as possible to that they can give you the right treatment for you as everyone’s treatment path is different.

    When I was first diagnosed with breast cancer I had both a CT and a bone scan to check for spread as I had lymph node involvement and a week after the scan I was told there was no spread which was a relief.

    Best of luck with your appointment next Friday.

    Best wishes

    Daisy53

    Community Champion Badge