Hi everyone
I had my lumpectomy and SNB on 14 December.
I see my surgeon on Friday this week for a "review" the letter says, buts it's the dreaded results. To say I am petrified doesn't really describe at all how I feel. My tummy is in knots. I have the runs. Sorry.
Prior to surgery, and immediately after I received my diagnosis from my biopsy, I was in such a state that the hospital made an urgent referral to a psychotherapist. I've seen him every week since and it helps to talk.
My surgeon was lovely when I met him. He held my hand throughout the entire meeting whilst I was lying sobbing on the bed (thing they asked me to lie on). He told me my lump is very small, approx 8 to 9 mm and caught via mammogram screening. He said the ultrasound scan indicated it's not gone to my lymph nodes and said he felt it's unlikely I'd need chemo "just radiotherapy". He even described my cancer as "one of the boring ones.....hormone receptive and will respond well to Letrazole afterwards".
He kept saying not to worry I can get this out and I felt so much better when I'd left that appointment. Then I say him again the day of the operation when he came to see me beforehand then again afterwards just before I was discharged, and he told me "everything has gone as expected" and said he'd sent my nodes and lump off to pathology.
Since then I've tried to put results day to the back of my mind but it's fast approaching and I've been online and read SO SO MUCH about surgeons getting it wrong and results being very different after surgery to what they were at the biopsy stage and I feel like my mind is going crazy with the worry if it all.
I suppose what I'm after here from anyone who has read this far, is some reassurance! I know that no one can tell me I won't need chemo as I think that's what I'm scared of the most. Just to chat to anyone else out there who is,nor has been in the same situation as I am right now.
Many thanks to you all xxx
Hi Mumpsy, I’m so sorry you are having to go through this trauma of a cancer diagnosis. The surgeon will see breast cancer patients on a daily basis and he will have a very good idea of what to expect from your cancer from the ultrasound, mammogram and biopsy. I would be very reassured by your optimistic consultation with him following your biopsy results.
Hi sorry you're struggling too!!
I've suffered with anxiety so badly for majority of my life so when I was diagnosed in May I must admit to several meltdowns.
It's exhausting isn't it?
Every test, every scan and then waiting for results is just horrible .
Here if you need to talk xxx hugs
I felt my surgeon was very confident and had the same likely treatment as you however the breast cancer nurse was more lets wait and see. Like you I have read a lot too and have needed to get my head around it may not turn out exactly as he said initially. My results are tomorrow so Im already preparing myself for the possible scenarios. Not clear margins or cells in the nodes means a different plan. For me that works rather than not knowing possible treatments. Its very hard to cope with mentally too. Keep positive and if you like to have info then read up on it. Knowledge definetly helps me xx
Hi Mumpsy , can only speak from my own experience. Your case sounds very similar to mine although I found my ‘thickening’ myself. I was told things very much like you’ve been. Mine was bigger though, they thought 15mm from ultrasound but was actually slightly smaller one removed, at 13mm. I had wide local excision/ lumpectomy and sentinel node sampling, then 3 weeks of radiotherapy (5 years ago, would now be one week). And I’ve been on Anastrozole (similar to letrozole) for 5 years too.
Good luck with it all, keep posting and asking questions, or just have a rant if that’s what’s needed! Love and hugs, HFxx
Hi Mumpsy, sorry you are struggling. You are not alone we have all been there. Waiting for results is the hardest part. Try not to Google things, there are a lot of scare stories out there and they are not official websites. Stick with MacMillan or breast cancer now. Also it puts your mind in overdrive that then doesn’t help the whole situation. Yes results can be different after all the info is gathered. The pathologist will be the one who confirms what’s what and give all the info to your surgeon and medical team. Yes it’s difficult for the surgeon to confirm if there is anything in the lymph nodes as it’s not something they can tell just looking at an ultrasound as there can be minuscule cells that are not detectable. The sentinel node that would have been taken on your lumpectomy will be checked throughly and they will let your surgeon know if anything is found. I was unlucky despite my tumour being small at 22mm the cancer had spread to my lymph nodes and I was found to be triple positive so I had to have the whole caboodle. It’s been a year since my first chemo and I’m now almost finished with targeted treatment. The year has gone quick and the support I received here and with friends and family helped me so much. I was scared but talking with others on here helped me a lot. Your medical team will do a plan tailored to your specific results and will go through everything throughly with you.
Wishing you all the best
Hugs from cuffcake x x x x x
I’m in the same position as you - I’ve had 8mm tumour and 3 lymph nodes removed 2 weeks ago and I get the results and treatment plan on 4th Jan - surgeon predicted radiotherapy but I know of two friends who were told radiotherapy at this stage which changed to chemo after the removal. I’m feeling quite nervous about it now.
Bless you. It sounds like a complete nightmare. My head's still in a spin x
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