Hi everyone
I had a 'Power Port' portacath fitted 2 days ago and start chemo next week for TNBC. The portacath has been a horrendous experience for me. I'm quite slight on top and am coping OK with the incisions but what I am really struggling with is what it feels like inside me. I am in so much discomfort in my chest when I bend down and constantly feel like I've got heartburn. Nowhere says anything about these sensations on Google other than the 'things that can go wrong' pages. I am also aware that my anxiety is through the roof and this isn't helping. My other half says that he's been looking at other forums and that these sensations and pains are normal.
I am going to contact the ward tomorrow to see if they can offer advice too.
Has anyone else had anything similar with their portacath?
Hi Rin, I’m sorry you are having problems with your port. I had an arm port and whilst it was uncomfortable for a couple of days taking paracetamol regularly helped with soreness. It was like it for about 3 days. I can’t say how it would be like in the chest but I would imagine it would be sore and uncomfortable for a few days too. Also when mine was put in I was given advice about what not to do as I am limited and shouldn’t do repetitive exercises and lifting. please try and avoid Google. It will either be of no help or just give scare stories. The best thing to do is contact your breast care nurse or the nurse/dr that did it for you. . Posting on here is also good as others may have had similar experiences.
Wishing you all the best
Higs from cuffcake x x x x x
I promise you this will get better!
I was shocked at how invasive the port insertion was, to the point of utter regret for the first few days.
However, once the swelling goes down and things settle you'll be fine.
So many nurses told me during my chemo "I love ports"! They are just so easy.
hope you called and got some answers, the first few days weren't great, pain at incision and pulling in my neck.
it should not give u heartburn feelings as it is not connected to that part to cause it.
i did get heartburn feeling while on chemo and it may be due to stress, i was given tablets.
but yes the port makes chemo and blood tests so much easier. hope it is settling
Hi MrsP2003 & Rin,
I felt just the same - port insertion was probably my least fav bit of it all. Not a great morning's fun on any level! I'm a bit further on in the journey & had mine removed back in March. I talked to the theatre nurse about how traumatic I'd found the insertion & she was brilliant - made sure I could see her all the way through, chatting & just reassuring me the whole time. Such a relief.
Ditto the nurses all preferring ports. Mind you, mine regularly refused to 'play ball' so they often had quite a work out and syringe fest to get things moving. Looked a right numpty flapping my arms around.
Having said all this, & to reassure Rin, if I ever have to do this again, I would have another port. It took a while to get used to it (& my teens wanting to use it as a USB charging point) but I think a lot of that was due to being so overwhelmed by everything.
Really hope things settle for you soon & that chemo goes well. The lovely ladies on here are worth their weight in gold, so keep 'talking'.
Hang in there & hugs to all
XX
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