the wait to get a definitive diagnosis and getting any kind of plan

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This is driving me mad, had appt in 2ww breast clinic on 21 november, back for biopsy results 10 days after that, then back for an MRI another week after that, MRI results due tomorrow, if more tumours have been seen then it’s another wait for another biopsy then back to another wait for histology. I know I’m not alone and loads of people have had this but gosh it’s tough, not knowing what is happening or even the extent of what cancer I’m dealing with, and knowing it’s unlikely anything will happen before christmas etc, just so difficult to cope. Haven’t told anyone except husband and work because I have no information to give anyone and don’t want to inflict this uncertainty onto anyone else! 

  • Yes it’s really tough. I’m sorry that you are in this position. It’s so hard to get through the days and be patient for answers and information. 
    I hope your MRI results tomorrow move things along. 

  • Argh I am the same, it is so hard going isn’t it? 
    07/11 I was referred to the breast clinic, 21/11 USS, mammo and biopsies and then 05/12 got my results - confirmed IDC grade 2. Now I have a scan tomorrow and I’m waiting until 17/01 for surgery. Then 2-3 weeks after that I’ll get the pathology and treatment plan . It’s SO LONG to wait. Just know you’re not alone. I spend half of the day okay but evenings and nights are a different story. I’ve told most people and felt much better that I wasn’t trying to pretend I’m okay and I went back to work yesterday. I seem to have a daily wobble and I’ve sent my nurse way too many emails with questions haha. Hope your MRI gives you a way forward xx

  • what a day - was waiting for a call about MRI as knew the MDT was today. Phone rings at lunchtime it’s a Macmillan support worker saying I had been referred for emotional support with my diagnosis and could she send me a form to fill in. She was lovely, but I was a bit panicked by now thinking was this related to the MRI…she then sent me a questionnaire and it was things like what would be your ideal day, have you thought of making a will etc - the logical part of my brain was thinking this is just coincidence, the illogical part was thinking oh gosh what on earth have they seen on the MRI. Was quite a panickey time. Anyway I rang the CNS and left a message and she called me back - they have found another lump and I need another biopsy, sigh…more likely to be after christmas…then another wait for the histology…hopefully after that i can get some idea of a plan! Sending lots of positive good vibes to everyone else in the same boat xx

  • I'm so sorry to hear about this.  I am a bit ahead of you, but the waiting, not knowing, is the hardest part.  Macmillan can't see our medical records, they only know what we tell them so please don't read anything into that email.  It's probably a generic list of things to think about.  I haven't made a will myself so wrote out a list of my bank accounts and login details the day before my operation.  Just in case.... but my family haven't needed it yet.

    Try to take it one day at a time and I know that's difficult  especially this time of year.  Have you got a named breast care nurse you can contact?