Treatment and follow up

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Hi all, 

I feel a bit lost. Last year, I was diagnosed with ER/PR+ breast cancer, underwent a mastectomy, put in menopause, and started treatment with Decapeptyl + Exemestane. Follow-up appointments are scheduled every six months, including blood/marker tests, abdominal ultrasound, breast ultrasound, consultations with the oncologist and breast surgeon, along with mammograms and gynecological check-ups annually. All of this was in my home country.

I recently moved to the UK, where I met an oncologist who strongly disagrees with my current therapy and suggests stopping it. I also discovered that follow-up procedures here are minimal, involving only a mammogram, not even annually, and a yearly check-up with the breast unit.

I wanted to ask if it is common in the UK to have minimal follow-ups, and what would you do if your current oncologist disagrees with your current therapy?

  • This is normal in the UK. If you have symptoms that could indicate a recurrence then further investigation will occur. The NHS have guidelines which are evidence based by NICE. They look at the research and cost benefit and consultants have to work within these guidelines. These can be found online. If you want extra check ups outside these guidelines you would have to pay privately. It must be disconcerting when you have been used to another health care system.