Very Nervous first visit after surgery

Hi Fizzler I had the same diagnosis and procedure, follow up was on Monday and all clear, now have oncologist appointment 30th. I have to have CT prior to radiotherapy and wait to see how many sessions. One thing I wish I had asked would be in regards to the oncotype test and if required, I think this is used to advise if chemo needed. I was absolutely petrified and felt sick and nearly in tears waiting to go in! Good luck for today and let us know how it goes. Have everything crossed for you x x x 

This is a roll coaster and we automatically think the worse about everything after a diagnosis of cancer. Try to stay focussed on the fact that the biggest part is done now, surgically removed the cancer. I’ve been on tamoxifen for 3 years now and whilst I struggled with side effects for first few months everything has settled down now. Depending on your age and other factors (I’m now 53) you may not need chemotherapy. (I didn’t), my advice is to try to stay well, walk, eat and drink what you fancy and trust in the professionals. Also take a few notes with your questions. (I always forgot to ask what had been on my mind) Treatments are so advanced now and success rates very high. Good luck! 

Hi Fizzler

I’d say welcome to the club but none of would choose this membership I’m sure ….

This is my first post here but I have also just received my Lumpectomy results (6 weeks after the operation having had 3 cancellations due to strikes etc).  My surgeon advised that the 22mm we expected was in fact a 55mm intermediate nuclear tumour plus 2 smaller micro invasive ones low grade. ER+ HER not applicable …. Bit of a shock on the day I have to say but thank you NHS for the mammogram program and speedy path to operation on a breast cancer I would not have known a thing about!! 

My treatment is Letrozole for 5 years and 5 sessions of whole breast radiotherapy in a couple of months once I’m healed enough.  I’ll have annual mammograms as I think we all get, and access to the team for 5 years.  The consultant said if radiotherapy shrinks my boob any more she would be happy to address that if I wish once radiotherapy is finished 

I took a list of questions but was shocked when I heard about the results and didn’t ask anything!!  I’m now waiting for a call from my BCN team to discuss it all.  I’m sure like lots of ladies I just switched off initially once I heard that the mammogram found cancer but I’m almost 7 weeks on from the op now and am more in control of my thoughts.  These forums provide so much support help and guidance and I wish everyone all the best.  

I have my results post op appointment today and wonder what questions should I be asking???

Hi Leaps,

I wanted to know if it had been successful and i had clear margins, what had they found (obv more than we thought in my case), what exactly they had done as my scar was very different to what I was expecting ( scar was bigger as they had to keep going back in to get clear margins im told). I wanted to know when I could moisture etc as I did not have any communication on discharge or from anyone at all for the 6 weeks I was waiting for my appointment).  I had been kept in overnight as I have MS and they were concerned about how I would react to the anaesthetic… all good I have to say.  I asked what treatment and when and how I could help myself be ready for radiotherapy 

Not sure if any of these help at all but good luck later, please let us know xx

Thank you. I'll keep you posted x