I have just finished taxotare chemo. The aches and pains are really bad bad after first cycle but then the oncologist adjusted the steroid dose and was better Fortunately, the nurse advised me to buy polybalm so my nails are fine - unlike most women on the unit.
What's bothering me the most are the pins and needles and numbness, which are really annoying in my hand and feet and feel like they are getting worse. The nurse advised exercise - which helps but also Phyto-v, a supplement which helped people with nerve damage and long covid - She said it really helped some women recently. It looks safe and will be starting today but just checking if anyone has any experience with it please?
Hi Chemolady,
I finished docetaxel as part of TCHP end of December 2021. I had numb tingly feet and numb painful finger tips - it was hard work fastening buttons etc. I didn’t take any supplements or medication but slowly these symptoms subsided and I don’t really notice it anymore.
I think exercise has helped and the symptoms were worse on the days I did less. Hopefully your symptoms will improve with time also.
Gillie x
Hi Gilliebean
That is reassuring as it's annoying, to say the least
I don't know if a placebo effect but after 3 days on phyto-v, it already feels better. I spoke to the nurse this morning and she said the other lady started improving after a week
Much happier today!
I think there is a lot of information about neuropathy after chemo. It can slowly recover with time. My body felt inflamed for about 6 months after chemo, gradually getting better. I wish I had found cancer active sooner as there is plenty of evidence based research on there, advising what might help and what not to do as well. I was told acetyl carnitine can help with brain fog and neuropathy, and it seemed to help me, but you might want to read about it yourself first. I also go fro hyperbaric oxygen therapy at my local (30 mins drive) MS centre, as they usually take cancer patients. It can help with chemo side effects and with recovery apparently. I find it helps me too, but again read for yourself and see what you think. I hope your aches and pains settle soon for you. My neuropathy is much better over a year on.
Hi Chemolady, I had CIPN in my feet. I found moving my feet to cooler areas of the bed helped but was a short relief. I was referred and I now have lidocaine plasters, use one on each foot for 12 hours. You then have to remove for 12 hours. I also have Doxepin cream to use 3 times a day. I have found this combo has helped me a lot and I am now hardly needing to use either. If I have a day where it’s not so good I use them again for a few days.
I also find now I much prefer to wear flip flops rather than putting my feet in shoes or trainers.
Wishing you all the best.
Hugs from cuffcake x x x x x
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