Capecitabine- side effects

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Hi,

 My mum has secondary cancers of liver, lungs and bones, primary was breast cancer 11 yrs ago. She's had chemo and radio. Refuses to have immunotherapy but as things have progressed they have offered capecitabine. Has anyone experience of this drug? She doesn't know what to do - worried about side effects.

Thanks

N

  • Hi Chaos 

    Sorry to hear about your mother's cancers.

    I was on capecitabine a couple of years ago after breast cancer surgery due to having cancer left in one of my lymph nodes.  I had 8 cycles of the drug, two weeks on and one week off.  I didn't  have any problems while I was on it.  I had to take 8 tablets a day, 4 in the morning and four in the evening. 

    Wishing your mum the best of luck whatever she decides to do.

    Best wishes to you both.

    Daisy53

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  • Hi Daisy53,

    Tha nk you for sharing your experience.  I'll pass it on.

    Best wishes

    Chaos

  • I’m on it for mop up after treatment for triple negative (8 cycles). It’s fairly ok and much better than Iv chemo. Side effects for me are ok, I was told they can lower the dose if needed. X

  • Thank you, I'll let her know.

    Best wishes with everything.

    N

  • Hi - I am just finishing 8cycles of Capecitebine as a mop-up after surgery like Elliebabs above. Started OK but gradually experienced the ‘hand/foot syndrome’ that is described among the common side effects. Mainly affected my hands - reddening, tingling and some numbness in fingertips. But in last week it has affected my feet which are v sore at the moment. At about cycle 5 I experienced severe diahorrea so the team reduced my dose - although only slightly 5000mg/day to 4600/day- that made a difference. I was also prescribed Vitamin B supplement for the hand/foot syndrome at around the same time as the diahorrea so I stopped taking it - as I thought it might have been causing or exacerbating the D - but that is just my hunch and not medical science. With the foot pain I have started taking the Vit B again and hoping that will help. Sorry if this is too much info in one go - might sound a bit awful but I would say overall I have managed with it. Hope your Mum copes with it - everyone is different and she might not have same side effects. 

  • Hi,

    Thanks so much for the info. It really helps to hear about other people's experiences.

    Best wishes with everything and thanks again for taking the time to reply.

    Chaos