hi there, I’m hoping somebody out there can advise or give opinion about what I can do.
i’ve posted before as I was diagnosed with breast cancer, late September 2022, I had a bilateral mammoplastomy and 20 sessions of radiotherapy. The cancer was ER and PCR positive. I think quite high as they gave a figure of 8 for each. My i oncho score came back at 11, so no chemo was required, even though there was lymph-node involvement, and the cancer, much more widespread than it had shown on any of my scans preoperation, one tumour was 8cm big , another 6cm.
I was told to consider a mastectomy again but then I was told to just keep it in bag so to speak as my score was low and they had removed all the cancer they could see. At the time I was told I was post menopause so was given letrozole to take which you have been doing since January. My menopause symptoms are horrendous, anxiety, depression, low mood, bloating lack of sleep brain fog. The list goes on. I had previously been taking HRT and felt really well now when I get up in the morning ache like I’m an old lady but I’m only 54. Despite a strict diet and exercise I have gained 4 kg, the weight won’t shift - and I’m fat and can no longer fit into my clothes comfortably. Unless I exercise, I struggle with joint pain and feel like I’ve aged 20 years. Surely there is something I can take to replace the oestrogen I’m no longer allowed to take, my doctor has prescribed antidepressants but it’s a hormone imbalance. It is affecting me. I’m bloated and feel like I could pop if that makes sense? I feel a shadow of my former self and don’t know what to do , I am having counselling and they say it takes time but with an ER score as high as eight I’m limited to what I can do. I don’t want to be in this position. The aging is horrid and causing so much pain, both mentally, and physically I honestly cannot string a sentence together and some days just can’t stop crying. I’m looking at other options like collagen, and take a range of supplements but is there anything you girls have taken that’s as good as HRT? And the weight god It’s insane this has never been a problem And I’m aware it’s so bad for reoccurrence.
Sorry this is very waffling my head is like a sponge, I’m so forgetful too honestly there must be something I can do. Physically the operation and radiothearpy were ok but lordy this is much worse xxxxx Honestly I used to be positive and had a sparkle now I just want to hide under a blanket but have to go into work everyday with a smile
That's not easy to cope with, I think we all have a version of it at this stage. Just been back today for my follow up. Changing over to Tamoxifen because I have Osteoporisis. Weight gain is hard to tackle. I'm going to keep going and hope that in Summer with more time outside it improves.
It has taken over our lives, I do my best to suppress that but I am feeling lazy, i try to make an effort. It's a bit of an uphill struggle. I don't know many things that help apart from day light and walking. Dancing for me but it can make me feel exhausted. 30 mins exercise or walking five times each week. You are probably doing that already. You are doing ok, don't expect too much too soon. I used to have to fake it at work at times, sleep deprivation is hideous. Xxxx
Don’t apologise, you will get plenty of sympathy on here.I came off Anestrozole mainly because I developed such bad discomfort in my right arm/wrist. I could not grip anything safely.Dr diagnosed tennis elbow but when my left arm developed the same symptoms, no way could it be tennis elbow in both arms when I had not been doing anything different. Two weeks off anestrozole and symptoms disappeared.Now trying Letrazole but not convinced. I have put on weight, lack energy, have mood swings and occasional hot flushes at night. When I stopped taking Anestrozole I felt like a hundred year old but within weeks I felt so much better. I have osteoporosis so Hormone Therapy is not great for me although I have been taking biophosphates prior to cancer diagnosis. On statins due to cholesterol levels rising since starting Hormone Therapy. It is a nightmare. I know many people are taking HT without any problems but for those of us who are unlucky, life is a challenge.
Honestly at the weekend I couldn’t stop crying, I was all over the place and feel so bloated. I walk 15,000 steps a day, that helps with my sanity too and without doing it but my moods all over the place, I bloody loved HRT it made me feel like my old self, not a hormonal blubbering mess
Wow that's a lot of steps, I can't that many. I feel bloated, it's hard feeling out of control. I could take HRT for long because if endometriosis. Moving onto Tamoxifen today. I felt a mess today. I like to stay busy to stop my head from overthinking about the wrong things. Xx
So sorry to hear this. I can totally empathise. I had a lumpectomy in October and radiotherapy. Didn't need chemo. Very strongly hormone sensitive. Same as your scores of 8.
Was on hrt when I got diagnosed so had to come off that.
Consultant tried to give me anastrozole. But I said no because I've always had so many problems with my crazy hormones. Even on hrt still had loads of menopause symptoms.
Had a chat with the oncologist who agreed that in my case .. very early stage cancer and not aggressive.. that taking anastrozole was not essential and that it is a balance.
My choice. Every ones circumstance is different. I just wanted to tell you my experience.
Lots of hugs to you.
Hello!
I read the above earlier today and almost cried as I could have written this myself. I'm 51. Was diagnosed at 50 and most of the above resonates (click on my name if you'd like to know more details about my diagnosis).
The aches, the pains, the bloating, the flushes, the lack of sleep, the dry skin, the confidence at ground zero, the inability to string a sentence together (now known as 'I'm having a really bad tamoxifen day' ;-))... the list goes on. I feel old before my time.
On the plus side, I'm on venlafaxine now which helps with some of the above, as does swimming and walking. I also have a lovely friend whose husband died suddenly and we go for a glass of wine and a rant every now and then.
Sending you lots of love xxxx
I might have reported you as my fingers can’t type properly - I’m sorry you feel the same, it’s so horrid isn’t it, the dry itching skin I honestly feel 64 not 54, I try to stay positive but then drink
wine and have the bloody guilt! I’m going to speak to my GP and have a follow up next week with the onoco am so scared of it coming back I’ll be too scared not to take it but oh man somethings got to give!
Hello and I saved your post as wanted to write to you and say I get it. We are estrogen deprived and our bodies like it but it is a no no for us ER and PR positive women. I was % positive for estrogen and progesterone so no HRT for me. I took it from 55 to 72 so had a long run of feeling really good . I think it is harder for you as you are much younger snd still with menopause symptoms. I remember them well snd still have some occasional hot flashes and sleep issues but I am slender so don’t have weight issues. We are all different and our symptoms present differently. I ride my bicycle and my hubby snd I push ourselves. Some days I don’t feel like it but I do it anyway snd usually feel better as I get along. I need to add strength training too snd I feel that most days I am either cooking, exercising etc snd my showers are funny as before I use to just wash and dry off snd be done. Not anymore as I need to moisturize, moisturize as with estrogen depletion my skin is dry.
Just don’t be too hard on yourself and take baby steps but keep taking them snd you will keep moving forward. Cry if you want as it can be a release. I haven’t read that collagen supplements do much and there is no substitute for a good diet so supplements are not always the answer.
I try to mentally feel positive but some days it can be a little difficult but I keep on trying. Also like to read about funny things snd get a good chuckle.
My medical oncologist have me some plant supplements to try for symptom relief and here is the link for you.
I live in HS so hope you can get where you live. https://hellobonafide.com/?g_adtype=search&gclsrc=aw.ds&&g_acctid=381-037-9272&g_campaign=DEPT_SEM_Google_Brand_All_Core_NAMER_US_All_CPA_BAU_AllProducts_Alpha&g_campaignid=1699276690&g_adgroupid=124855105330&g_adid=561044587124&g_keyword=bonafide&g_keywordid=kwd-387315420&g_network=g&utm_source=google_adwords&utm_medium=paid_search&utm_campaign=DEPT_SEM_Google_Brand_All_Core_NAMER_US_All_CPA_BAU_AllProducts_Alpha&utm_term=bonafide&gclid=CjwKCAjwvJyjBhApEiwAWz2nLYMWY86cFk96aI-NJ5ydTudYQ-EME7zSTgVgBhgnJqUGeSThkHFlzhoCVMAQAvD_BwE
Barbara
Barbara
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