Change of treatment plan

Hi 

So sorry to hear your treatment has had to change to accommodate new diagnosis. 

I had different type and treatment but like you had a shock that 10/14 nodes had cancer so total clearance and chemo came into the mix, I was devastated as thought I only needed radiotherapy.I tried to stay positive and to take one day at a time. Each day was a day closer to the finish of active treatment as still have 10 years of meds..

I had a tough time and not with out black days but tried to stay focused on the fact I was throwing everything at this to up my chances. 

1. Bless you it is so hard at times I look back and ask myself if I really did it but I did. 

Being on this site really helped and there are councillors you can talk to. You aren't alone and this is not something any of us would choose, we are stronger than we think. Take care of you and if you need a good cry let it go. X

Thank you x

I was expecting to stay on the phesgo and have radiotherapy. So to go back to having more chemo has made my heart sink… also reminds me of how sick I am! 

I am so pleased you are doing  well  . It is a hard ol journey isn’t it x

Hi

The journey is certainly hard and different for us all.  I guess  we all will have to live with the dread of reoccurrence etc. But I think while we are here we have a chance to beat this it will leave it's mark emotionally and physically but we must fight on If it helps to talk to people who understand then talk away. 

Hug to you x

It seems to want to take everything!  I have just got myself dressed, Iv got to put these thoughts to the back of my head! Chemo starts again Monday so I need to get some strength from sonewhere

take care of you too xx and yes it really does help just letting it out xx

Hi Frankiedoo, sorry to hear of your diagnosis. I too was gutted to find I had 10/14 nodes positive after having a complete axillary clearance. Had a CTPET scan which showed no spread but now having chemo to mop up any rogue cells that might be hiding undetected with 15 days radiotherapy to follow plus hormone treatment and targeted treatment for the next year. I’m sure there will be others who have had similar experience and can let you know how they have coped. 
The easiest way I coped was to accept my diagnosis and know that my treatment plan was specifically designed for me to help get rid of the cancer and hopefully prevent any reoccurrence. Talking to lots of other people on the site has helped too. Everyone says stay positive, it has the best outcome. Hiding away I found just lead me to a dark place. We only live once and there’s far too much to enjoy to let this disease beat us. 
Wishing you all the best in your journey.

Hugs from cuffcake x x x x x 

Thank you for your reply  

yes those thoughts lead you to dark places. It happens all the time, but I pull myself out somehow. This time a little harder!! 
its so hard to be positive, but like you say you need to be and live!!

how far are you into your treatment? Xx

I do hope all good with you  and sending you hugs xxxx 

Hi Frankie

I think most of us feel the same some time or other.  I had a 47mm tumour removed and all nodes removed. 10/15 positive.  I’ve had 8’rounds of chemo which I am told is preventative as with 15 rounds of radiotherapy and 10 years letrozole and 2 years Abemaciclib and bone infusion. It’s a long hard slog but I am hoping the treatment will save my life.  We have to be positive.  I am about to start radiotherapy so do feel like I’m nearing the end.  We have to trust the professionals.  Good luck x