Happy New Year Everyone
In July 2010 I was diagnosed with breast cancer. Had lumpectomy, chemo, radium and letrazole until March 2016.
Then in 2020, almost to the week, I had it again in my other breast. Again lumpectomy, no chemo, but radium and letrazole.
Throughout my treatment and support was superb.
Just before Christmas 2022 I was in the shower and noticed my left breast (first cancer) was discoloured from my nipple to my cleavage and was spotted with little red dots and veins. I was a bit concerned so rang my GP (practice has been taken over by new doctors who I haven't met yet). I explained my circumstances but was told there were no appointments available.
I accepted this as I was a bit stunned however I decided to ring my former Macmillan nurse but had lost her number. So I rang Macmillan national office. They were excellent. Gave me comforting advice and Louisa's number.
I rang and left a message on the phone.
Later I had a message from my surgery that 'they might be able to help'. I went round but no-one knew what the message was and the other receptionist had gone home.
The new receptionist insisted they had no appointments and asked me to tell her what the problem was. This in front of a roomful of strangers.
I did so but again she insisted there were no appointments. By this time I'd got my head straight and asked her 'Does the 2 week cancer guarantee not apply to this surgery then?'
She was shocked. I don't think she had even heard of it. The new GP was walking about behind her but did not interfere. Eventually I was seen by a practice nurse who had a look, agreed it was strange and said she would email for an appointment and the Burney Breast Clinic.
I left but by this time had missed my first grandchild's first nativity play but went and saw him leave the stage in his King costume. I was a bit upset so we all went out for tea.
At around 4.15 I received a phone call from the breast clinic making me an appointment for 4 days later. All thanks to Macmillan.
The point of this lengthy message is, I don't think all staff in surgeries know what the rules are. I do. But I worry about those who do not and who are left to worry and stress over things like this. It isn't right. The queue in the surgery behind me were agog when I told the receptionist. She looked thoroughly clueless. Disgraceful.
Anyway, Consultant very helpful and I'm going back 7 February. There was some thickening of the breast skin but it may be a result of previous radium.
Fingers crossed and good luck to everyone going through this.
