So my mums vein felt sore and hard and she told the hospital who got her in for a urgent scan, they said it was a blockage as she had irritation from the chemo, they gave her a bag of injections to do each day to thin the blood and help clear the blockage and also said she would have to have a pic line put in before her next chemo as that’s the only way she could have it now. She started the daily blood thinner injections then just happened to have an appointment with her oncologist the other day. They said why on earth is she doing those injections because when they put the pic line in if her blood is too thin she could bleed out. Told her it was a mistake and to stop immediately so that it can go ahead. She doesn’t have the energy to make a fuss but I’m furious and can’t stop thinking that if she hadn’t happened to have that appointment they would not have known and anything could have happened. I’m so angry and don’t know what to do with my feelings right now
Thanks for your reply, yes I think it’s horrific but I get why I probably shouldn’t go storming in like a bull in a China shop only out of respect for my mum although it is taking a lot to hold back right now. I guess I just wondered if other people have had any similar experiences with the nhs and if I’m overreacting given the current climate… although I have to say that I don’t really give a shit about that in the selfish context that this is my mum
My diagnosis (Stage 3 with lymphovascular invasion) was delayed for 5 months due to a hospital error. I know how angry it can make you, but all you can do is focus on getting through the next stage and become more of an advocate - ask for explanations, tell them if you’re not happy or are concerned and ask for another opinion. I did, within a year, put in an official complaint when I was less upset. I know it will make no difference to my own prognosis but I felt at least I could highlight the chain of errors that lead to someone being sent home to take paracetamol instead of being diagnosed for those coming after me. The Breast Unit knew from the second they saw me 5 months later (after me sobbing in the phone and then refusing to see me for the same lump) that they had messed up - and they were sorry - but that’s not the same as an official complaint which investigates exactly what went wrong and makes it safer for the future. So relieved for you that they picked this up for your Mum and that she hadn’t come to harm as a result. But try to channel that anger or it can tear you apart at a time when you need to concentrate on her and next steps. I think you get a year from the incident to put in a formal complaint so if that’s something you might like to do make sure you’ve noted the dates and what happened and then you can set it aside until you know what you want to do - also your mum will be much further down the line before you have to make a decision. I hope this helps.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007