TNBC secondary in liver

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I am feeling rather numb today. 

in February I was diagnosed with early stage TNBC following a routine mammogram. It hadn’t spread to my lymph nodes but there was vascular invasion in my 18mm tumour. I was advised to have adjuvant chemo and have had 4 cycles of EC and am close to the end of 12 Paclitaxel. In August I had an issue which caused me to be hospitalised and led to me having a CT scan, where they decided they might as well do a full chest, abdomen, pelvic scan to check for cancer as I had high risk disease. No-one was expecting to find anything other than the diverticulitis which hospitalised me in the first place. 

It’s taken 7 weeks to get the result back, to be told, rather bluntly over the phone, that I have cancerous spread to my liver. Only 1 lesion apparently. So I go from thinking I am almost done with chemo, to having a PET scan and possibly an MRI (not sure whether this is possible as I have an artificial hip) and whatever further treatment is indicated. The best hope is that the Paclitaxel (of which I had had only 1 treatment when I had the CT scan) has worked successfully n the liver lesion in the interim. 

I didn’t think 2022 could get any worse. Outcomes, if the Paclitaxel hasn’t worked on it, don’t look great. 

  • So sorry to hear this.  I hope the paclitaxel has worked and your further investigations and treatment are quicker than your 7 week wait for a CT. result.  Here for you x

  • Sorry to hear that Goddfish.  Hopefully the paclitaxel has worked on the liver lesion.

    Daisy53

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  • Hi Codfish, finding out you have secondary cancer is horrid and so unfair. You must just be feeling absolutely devastated, scared and many other things beside. I want to send you a big virtual hug.

    I guess I also just want to say hang in there - if it is a solitary metastasis there may be the option to remove it. Its worth asking about whether there might be a surgical option - can they cut it out perhaps? I don't know if its possible but I get the impression that you are really proactive - can you call your breast care nurse to find out? In the meantime, I really hope the paclitaxel blasts those unwanted cells for you xxx

  • They need to complete the scans to work out what it is and what can be done. Nodes around the breast and nodes around the liver clear so one possible answer is it is actually an unrelated primary as there aren’t any other classics signs of mets. Ablation may be a possibility. 

  • I am so hoping this is the case for you and it can be removed. Thinking of you in the waiting phase. I hope its short and you get a treatment plan for it ASAP. xx

  • I would ask for a biopsy to prove or disprove their finding, and also because treatment options and outlooks would be different if this is indeed a breast cancer met or a different type of primary. A biopsy could also prove that there is no cancer there at all -- I was once told I had mets, based on scans only, and when these "mets" were taken out and sent to pathology, there was no sign of breast cancer in any of them (four out of five were completely benign, the fifth one wasn't, but still, not a breast cancer met.)

    But before that, I'd want them to repeat the scans once treatment is finished to find out if there is still anything there to be seen, or it's all gone now.

  • Thanks, that’s great advice

  • Hey I had a lesion on my liver too, it turned out to be nothing.  Get the scans first.  Hugs xx

  • Hi! I had 5 liver lesions on CT scan and was sent to PET. They proved to be 4 hemangioma and one cyst without any response to the contrast solution. Hope you`ll receive good news.

  • Thank you, I remain hopeful!