Hi - I’m new here.
diagnosed with grade 3 invasive breast cancer a couple of months ago. Just had surgery to remove the tumour and biopsy some lymph nodes.
I’m meeting my team tomorrow to discuss findings from the surgery and beginning chemo. I want to talk about access ports. I was hospitalised recently for an infection in my wound and it took six members of staff just to draw blood, then I had two cannulas that both became blocked within 24 hours. It was incredibly painful, to the point I was sobbing in agony and experienced nerve pain shooting down my fingers.
I have always been difficult to bleed, but with limited access now due to the lymph node surgery and this awful experience at the hospital, I simply do not want any more cannulas. They have suggested a picc line, but I want to ask for a port a cath. Am I within my rights to do this?
Hiya Kitty
Hope you're feeling a bit better?
I, like yourself, have been very difficult to get blood from over the course of my journey, mainly due to dehydration. Are you managing to drink much water? I found it helped when I drank tonnes.
I've had a PICC line 3 times (for different health issues too) with no problems whatsoever. They were actually a brilliant alternative to having a cannula each time.
It didn't take long to attach, didn't hurt and really cut down the time I was in treatment. The only small thing that bothered me was having to keep it dry in the shower. You can ask your team for special covers.
Could I ask why you're not considering PICC?
All our journeys are different and nuanced and you have to do what feels right to you.
I cant give you any info on port a cath as I've not even heard of it.
Sorry I can't help much, but I imagine someone else could
If this is a bit rambling, I apologise (the menopausal brain fog has taken over this morning!)
Sending much love and hugs
Kate xx
Hi,
it’s the needing to keep it clean and dry that’s concerning me a bit. I like to swim as both exercise and for my mental health and having to stop that for the 5 months of chemo is going to take a toll.
I think that all my negative experiences with needles and cannulas have also led to me not wanting anything sort of dangling - I’m also autistic and although I manage most of the time pretty well, this has become something that’s really causing me a lot of stress.
I will speak to my team tomorrow - thank you for your reply.
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