Chemo access question

  • 2 replies
  • 281 subscribers
  • 47 views

Hi - I’m new here.

diagnosed with grade 3 invasive breast cancer a couple of months ago. Just had surgery to remove the tumour and biopsy some lymph nodes.

I’m meeting my team tomorrow to discuss findings from the surgery and beginning chemo. I want to talk about access ports. I was hospitalised recently for an infection in my wound and it took six members of staff just to draw blood, then I had two cannulas that both became blocked within 24 hours. It was incredibly painful, to the point I was sobbing in agony and experienced nerve pain shooting down my fingers. 

I have always been difficult to bleed, but with limited access now due to the lymph node surgery and this awful experience at the hospital, I simply do not want any more cannulas. They have suggested a picc line, but I want to ask for a port a cath. Am I within my rights to do this?

  • Hiya Kitty 

    Hope you're feeling a bit better? 

    I, like yourself, have been very difficult to get blood from over the course of my journey, mainly due to dehydration. Are you managing to drink much water? I found it helped when I drank tonnes. 

    I've had a PICC line 3 times (for different health issues too) with no problems whatsoever. They were actually a brilliant alternative to having a cannula each time.

    It didn't take long to attach, didn't hurt and really cut down the time I was in treatment. The only small thing that bothered me was having to keep it dry in the shower. You can ask your team for special covers.

    Could I ask why you're not considering PICC? 

    All our journeys are different and nuanced and you have to do what feels right to you. 

    I cant give you any info on port a cath as I've not even heard of it.

    Sorry I can't help much, but I imagine someone else could Blush

    If this is a bit rambling, I apologise (the menopausal brain fog has taken over this morning!)

    Sending much love and hugs Hugging

    Kate xx

  • Hi,

    it’s the needing to keep it clean and dry that’s concerning me a bit. I like to swim as both exercise and for my mental health and having to stop that for the 5 months of chemo is going to take a toll. 

    I think that all my negative experiences with needles and cannulas have also led to me not wanting anything sort of dangling - I’m also autistic and although I manage most of the time pretty well, this has become something that’s really causing me a lot of stress. 

    I will speak to my team tomorrow - thank you for your reply.