Hi, I was diagnosed on 10 March 2022 and was put straight on to letrazole (they knew that the surgery would be delayed because I needed a lot of investigations prior to surgery)
I’ve found the side effects of letrazole very difficult to cope with - nausea, loss of appetite, fatigue, hot flushes, insomnia. The team were reluctant to accept that these were side effects of the letrazole (at least that’s how it felt to me) and were quite keen to put a lot of it down to anxiety because of all the investigations, the surgery, radiotherapy etc.
Anyway having finished all of the above, 4 months in they have now suggested stopping letrazole for a few weeks to see if my symptoms improve and then moving to exemestane instead.
its 2 weeks since I last had a letrazole - oh my goodness, the difference in me! I’m eating, sleeping, exercising, no hot flushes in fact I feel like I did back on 9 March.
(I do feel vindicated - I knew it was the tablets, not my head!)
I’m rather dreading going back onto hormone tablets - I know they are different and that the side effects are potential etc etc and that I need to keep positive and wait and see, I might not even get any side effects etc. I do know all that - I just need to tell people who understand (that’s you) how much im dreading it. It’s rather spoiling this few weeks of normality and I really want to enjoy them.
thanks for listening 
