Hi everyone,
After six months on a neo-adjuvant trial of letrozole plus palbociclib, followed by two failed attempts at a lumpectomy plus some nodes removed, I have now been told I need a full mastectomy. The most recent MRI suggested the tumour was 3cm, hence the decision to go for a wide local excision, but when it was removed, it was actually more than 6cm and the second op to have a cavity shave didn't get rid of it all either.
It's been a long process since diagnosis last September and I'm feeling rather frayed at the moment. Now I have to decide whether to go for implant reconstruction at the time of surgery or not and I wonder if anyone has any thoughts on this, or any experience they may be willing to share? On the one hand, I can appreciate how having reconstruction straight away might help me psychologically, but I am worried about possible side effects of subsequent radiotherapy. I've played the odds of the trial and the chances of success with the lumpectomy and lost out on both counts, so I am just thinking that knowing my recent luck, I will end up with side effects. I'm 58 and my bikini days are over, so I am thinking I just leave it for now, but I am conscious that how I will feel about losing my breast after surgery may present a different set of challenges and I won't know how I will react until it has happened. I know the decision has to be mine, but that feels rather lonely at the moment and in my current state of mind, I just can't think straight. My surgeon and nurses are brilliant, as are my family and friends, but I would appreciate some thoughts from others who have experience as patients.
Any thoughts would be most welcome.
Thanks!
Hi. I didn’t have reconstruction because my friend said she wish she hadn’t had it done at the same time as a mastectomy. They used her back muscle and five years on it still feels tight. I was offered a different type but still have not had it done. Hardest part is getting a comfy bra but when the prosthesis is in it’s like having my old boob back and it warms up and feels the same. Bit odd when I don’t wear a bra on hot days but u get use to it. I’m told I can have a reconstruction whenever but I’d rather have a new knee. I’m 58 too. Hope that helps x
Hello Loobylou16,
I am 10 week's post Mastectomy without reconstruction. My Cancer returned after 8 years and I simply just wanted it gone! Initially, I thought yes, I will go for immediate reconstruction, but then my next thought was, let's just wait and see how I manage without my Breast. I think as Gwills says, once the Bra and Prosthesis is in place you wouldn't know. Right now I cannot wear my Bra for longer than an Hour because there is still a lot of healing to be done, but when I put it on, well, I feel brilliant. Clothes do look a bit funny though because I am very lopsided with one Boob.
It is a very personal decision though, but sadly I have had so much surgery in my life, that the thought of any more fills me with dread. I was a bit concerned how my Husband would react when he first saw me, but there was no need to worry because he didn't even flinch and said I am still the same to him.
Even after just 10 weeks, I know I can do this. Perhaps if this was the first time with Cancer, I would be thinking very differently, but it's not. I am also 58 and yes I no longer wear Bikinis, but there are Tops etc. that I have seen online that look good for when you go on Holiday or Swimming. I was sent various soft Prosthesis from Knitted Knockers which is a lovely Charity and it all seems Ok for now.
I am going to my Nephew's Wedding tomorrow and have decided to wear the Bra just for the Service then put a scarf over me after that.
Not sure if my response is useful to you. It is a big Operation and the Body and Mind need time to adjust to it, whatever you decide.
Best,
xxx
Thank you Gwills, it's helpful to hear it feels OK once the prosthesis is settled in. I'm worried about going back into work (I'm a secondary school teacher) but it sounds like it will be OK once I get used to it.
Thank you DamBella. Your response is very useful and it's good to hear the positives from you both. I didn't know about Knitted Knockers but it sounds good! I hope you enjoy the wedding and good luck with your continued recovery. x
The prosthesis you get (the proper one) when you get fitted with a bra at the hospital is the best one. It’s not a softie it actually feels and weighs like a real boob. It’s amazing. My only complai is the nipple on it is a bit small. Ha
I'm having a double mastectomy in two weeks. I googled double mastectomy and was quite shocked at what I saw as images. Today I was at the hospital for pre surgery checks and they told me not to google. Having seen pictures of reconstruction without a nipple , I don't think I'll go for it. I don't know much as only just researching it but a nipple less breast would be like an alien being on my body and might traumatise me more. I just need to get slim and will be able to wear Calvin Klein barrettes for once as they didn't fit me. I feel so much better after being at the hospital today, they are all so lovely and make you feel special. I have two different cancers in both breasts and don't have cancer in the family so it s weird but it'll be good for the surgeon, apparently my condition is very rare. All the best to you
Hi, Cuba I had a double mastectomy over a year ago. Being flat doesn't bother me too much but I am in my early 70s. My scar looks fine and I never had any post-operative problems, not even drains. For special occasions I use prosthesis. If I was younger I would probably go for the reconstruction but as it is I don't miss the weight of my previous j cup. There is a flat chest facebook site with some lovely-looking ladies on it. Good Luck whatever you decide x
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