No scan after treatment

FormerMember
FormerMember
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I was diagnosed with grade 2 HER- es and pr + IDC in August, I had no lump to feel, it was picked up on ultra sound. The size was unclear on the the ultra sound scan so I went for a MRI scan that showed a 2 cm area, along with other areas affected including a lymph node. 

Treatment was left mastectomy and full lymph node clearance, 2 out of 17 had cancer. Because of lymph node involvement chemo was recommended X 3 of ER and x3 of DC. I had my last treatment 3 weeks ago, thank goodness. No radiotherapy as everything was taken away. 

Seen my oncologist and she discharged me, offered no scans. I asked the question how do you know it's gone, how do you know it's not spread without any follow up scans. She told me my chemo was just precautionary and the cancer has gone, and sent me on my way with Tamoxifen that I have to take for 10 years. 

Has anyone else just been sent away without follow up scans, I feel like I'm not trusting the process.

I am back at the breast clinic in May

  • Hello. I didn't need chemo just had lumpectomy, sentinel node removal and radiotherapy. they told me the cancer is gone but I've yet to check how do they know. I did have CT scan for rads but nothing else. When I get general aches and pains, my mind goes off on a tangent. I will have my first mammogram post treatment in May and may ask someone then (not sure who as breast nurse is useless).

  • FormerMember
    FormerMember in reply to Tired Minion

    I feel exactly the same, I mean I should feel happy that I have finished treatments, but how do they know it hadn't already spread somewhere else and that the chemo I had found it and got it. 

    I don't feel like I can celebrate. 

  • Hi Cjx

    Welcome to the forum and sorry to hear that you were diagnosed with breast cancer.

    If it would set your mind at rest would you ask your surgeon or your breast care nurse  for a scan particularly as there was cancer in two of your lymph nodes?

    Wishing you the best of luck with your appointment in May.

    Best wishes

    Daisy53

    Community Champion Badge

  • I had a chest abdo and pelvic CT scan (which thankfully was clear). I thought that was standard

    X

  • FormerMember
    FormerMember in reply to Daisy53

    I asked the oncologist she just said no we don't scan. I did ask how do you know it's all gone, all she said was your cancer has been taken away, and you had precautionary chemotherapy. 

  • I asked the same thing and was told there's nothing to check, you have no cancer so nothing to look for! just felt there should be a scan after 6 months of chemo but apparently not.

  • FormerMember
    FormerMember in reply to hev999

    Can I ask when your last treatment was, I feel that if we have to go through chemo as precaution, we should at least get a scan when we've done. 

    Most people I speak to have had scans afterwards, all be it they had a different type and grade. 

  • They have to limit the number of scans a person has as a ct scan itself uses radiation which in turn can cause cancer. 

  • I've had three CT scans in the last 11 months....dammit. 

  • FormerMember
    FormerMember in reply to Eline

    Face palm tone1‍♀️‍♀️