I was diagnosed with grade 2 HER- es and pr + IDC in August, I had no lump to feel, it was picked up on ultra sound. The size was unclear on the the ultra sound scan so I went for a MRI scan that showed a 2 cm area, along with other areas affected including a lymph node.
Treatment was left mastectomy and full lymph node clearance, 2 out of 17 had cancer. Because of lymph node involvement chemo was recommended X 3 of ER and x3 of DC. I had my last treatment 3 weeks ago, thank goodness. No radiotherapy as everything was taken away.
Seen my oncologist and she discharged me, offered no scans. I asked the question how do you know it's gone, how do you know it's not spread without any follow up scans. She told me my chemo was just precautionary and the cancer has gone, and sent me on my way with Tamoxifen that I have to take for 10 years.
Has anyone else just been sent away without follow up scans, I feel like I'm not trusting the process.
I am back at the breast clinic in May
Seems my reply has disappeared, last word not approved, sorry.
As I posted previously, I've had three CT scans in last 11 months.
Panic over...
"A Harvard Teaching Hospital expert sums up the safety angle: “Radiation-induced soft tissue injury occurs at about 2000 mGy [equals 2000 mSv] and higher. A human CT scan produces far less radiation: the typical dose for a head CT scan is less than 70 mGy, and a typical body dose is less than 20 mGy. And since the body repairs itself, any damage (if it were to happen), would be repaired in less than one year.”
the radiologists are the correct people to work out the risks in each individual case as the radiation used is different depending on pts for example their bmi, where the cancer is so a article is only a rough guide not a rule.
the other reason for not giving repeated scans is a person has a scan it’s all clear in a months time they feel a ache or tenderness they want another scan so when does it stop? Also it gives people a false sense of security and then they don’t routinely examine themselves.
now whilst I sound like I am against follow up I am not I think there should be a standard one all pts get eg completion Ct scan in 6 months a appt with oncologist/surgeon with ultra sound then a Ct scan at a year.
I'm actually halfway through but I asked this on my last oncologist telephone appointment about 2 weeks ago. a friend suggested maybe pay for a private one to put mind at rest. I do know exactly how you feel.....
I feel exactly the same. I didn't need chemo just lumpectomy, 2 nodes removed for testing and cancer had not spread. Then radiotherapy. Had my first mammogram which was OK. I still get little aches and pains and my mind goes crazy, overthinking what if, what if, how do I know? Still don't have any answers. Again don't know who to ask (breast care nurse not helpful).
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007