No plan with onco , so upset

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As loads of you know , I had my first onco appointment today 

waited an hour to be seen in clinic , only to be told that he could not give me a plan because I hadn’t yet had my liver mri ( that’s tomorrow ) 

So I’ve got another 2 week wait !! Im pretty angry , I flagged this up two weeks ago and BCN did nothing about it 

I just want a damn plan , I’ve been waiting weeks and weeks now and there’s always something thrown up !!

My sense of hope is going , I feel so desperate and alone 

Love to all

L xx

  • FormerMember
    FormerMember in reply to Harleybear

    How are you Harley post chemo? I hope the sickness is staying away this time with the help of the tablets? xx

  • FormerMember
    FormerMember in reply to Dollydimple

    How are you doing Dolly? Has the sickness passed and have you managed to get more sleep since your post above? xx

  • I'm doing ok thanks D.

    love & hugs

    Daisyxx

    Community Champion Badge

  • Wave tone1 glad you’re feeling not too bad except the mornings and hot flushes although sounds unpleasant !, is that a se then ?  

    Im having digestive  issues still , think my oesophagus is blistered or something , nurse is calling me in a bit hopefully 

    love and hugs 

    L xx

  • Hiya , sickness has improved ( fingers crossed !) didn’t get to sleep until 5am tho , bizarre 

    How you going ? 
    love and hugs 

    L xx

  • Glad to hear that the sickness has improved Dolly.

    Daisy xx

    Community Champion Badge

  • Hi Doria, 

    im not going to say this last week or so has been a breeze but it’s not been as bad as I thought it was going to be. I’ve coped I’m not 100% but I’m not going to be for a while now. Yeh the hot flush I’ve only had the one and it floored me but worked the other way round for me super hot stripped off then drenched in cold clammy sweat. 

    My sister in law was the same in regards to regulating her temp after chemo ect she eventually tested for thyroid trouble so she now on meds for that and a lot better. It’s the chemo gift that keepsRolling eyesn giving I get a new gift every day so far, todays gift looks like the mother of all periods Rolling eyes.

    Anyways how’s you? How did your pre op go have they given you a date? 

    love & hugs

    D xx

  • Hey L, 

    what’s an se then? Lol

    Digestive issues the oesophagus blistering does not sound like fun I hope they come up with a soloution to help it being less sore. My digestive issues is the toilet run which I thought maybe a problem to me 16 times in a day my backside is a sore burnt mess still, had to take loperamide to calm the amount of times I was going. It helped a lot but still so sore. 

    As I said to Doria every day there is something new chemos gift that keeps on giving. I’ve not been too bad on the sleeping first couple of days only a few hours but that was either the steroids or being in hospital not sure which, so I really hope that improves for you and that the sickness has calmed down. 

    im having a slice of toast in a morning to help with the nausea it seems to be helping. I hope today is a better day for you.

    love & hugs

    D xx

  • Dolly, any news regarding your liver? How are things now?

  • Side effects , was trying to be cool LaughingLaughing

    Owch that sounds horrible ! Hope that settles , jeez Sob 

    How you doing otherwise , how’s the cough ? 
    love and hugs 

    L xx