No plan with onco , so upset

Aw that is awful.  Can they not push the results of MRI scan through quicker so you don't have to wait another 2 weeks?  When were.you first diagnosed with BC? Am sure they have to have plan and commence treatment within a certain time frame xx

Dollydimple said:

could not give me a plan because I hadn’t yet had my liver mri

Great coordination on their part, and espeially as you flagged it up. I don't like your BCN too much for doing nothing about this, then making you come in, wait an hour, all for nothing. Perhaps you should consider putting in a complaint, and also, ask to be transferred to a different BCN. You are likely to be dependant on your BCN for some time to come, and you need someone who cares, pays attentions, and actually does her job. Also, best to make it clear at the outset that you are not going to take things like this lying down.

He says the first onco slot is two weeks away so he’s booked that in for me regardless of what the results say ( and that’s him marking the mri results as urgent )

I’m just so frustrated 

Was first diagnosed on 2nd Feb . I mean where the hell has the cancer taken itself off to in the mean time ? 
L xx

Oh I’m so angry . Actually drafting a complaint now , I may not send it but it’s getting the anger out ‍♀️ 

The BCN has turned out to be of zero support to me which is sad and unbelievably frustrating . 
I hate complaining about our NHS , I’m a massive supporter but my God some of it is a flippin shambles 

Hope you’re doing ok ? 
L xx

I actually work for the NHS, and I am telling you, go ahead and complain. I lodged in a formal coplaint not long ago about something. Kept the heat out of the way I phrased the complaint, kept my manners in, but made the issue very clear. They responded well, explained what needed to be explained, told me what they were changing as a result of what had happened, and mostly I was happy with the result, because they took effective action, which was what I was after. (I did start off being after blood, but my partner talked me down from that and I then waited a few days, calmed down a little, and was able to focus on the issue rather than on how I felt about it.) You are not "complaining about the NHS," you are complaining about one individual.

Thank you for this  , I do remember you saying this now 

You’re right , it’s about one individual 

Im off for a walk to calm down ‍
L xx

I think like greycats said you have every right to put in a complaint . I sent an e mail via PALS  about part of what happened  to me .  The very act of just writing it all down made me feel slightly better . I was contacted to ask if I wanted to make this a formal complaint or just to discuss this .  I haven’t got back to them yet as don’t really have the strength for any sort of battle .  But writing and sending it did make me feel better . 
Also I do think you need to consider asking for a change of BCN , mine has been less than useless and I wish I had asked for a change .  The one I saw to take my drain out was much nicer and told me things about the support I should have been offered that I didn’t even know about . So do it get a new BCN and send that e mail to PALS XXXX

I’m sorry you were so unsupported 
it’s just so draining to say the least , at a scary traumatic time 

Thank you  for your advice 

love 

L xx

I can honestly say that the waiting is the absolute worst part of this .   Hopefully when all the information is is in you will have a plan .   Just be prepared for things to change along the way and that too can be very frustrating.   I  rubbish at following my own advice but try to use this time you have before the start of the treatment to do things you like , meet with friends and family .  I just stressed the whole time .  Now that I am in the waiting game again I am making more use of my time and seeing family and going out with my dog .  Xxx

Oh L, I’m so sorry your onco appointment didn’t go to plan, I really do feel for you . 

it’s worse because you really build yourself up to go and listen to them, also expected some sort of treatment plan. 

On the upside because there has to be one, when you go back in 2 weeks which I know is going to feel like forever again, they will have gathered all the info to be able to give you the best plan of care. 

Take these 2weeks to do whatever you want, weather is picking up, enjoy some time with family and friends. 

Your not alone we are all here with you, 

sending many hugs  

love Dx