Lymph nodes

Hiya,

I had lobular cancer in 2016 aged 43, 53mm and 14 out of 18 nodes with cancer in. I had a mx, chemo, radio, my ovaries out and I take letrozole  - another 6 years to go on that! I have also just been prescribed alendronic acid as I have oesteopenia in my spine but I haven't started taking it yet, going to wait to see a dentist first. 

But on the whole I am doing great - I celebrated 5 years cancer free in November. The treatment isn't easy but it is do-able, nowhere near as bad as I was expecting it to be. I don't think I can say that I have any side effects now. I often feel really tired and after a full day at work I feel exhausted - I often wonder is it post treatment effects or just getting older!!

Try to stop thinking about cancer. You have not got cancer any more, and you are going to have treatments that will provide you with defenses to stop it from coming back. 

Cwtches, 

Gay xxx

Hi Valsy

Welcome to forum and sorry to hear that you have been diagnosed with breast cancer.

I was diagnosed with triple negative breast cancer last year and after having chemo, surgery and radiotherapy I am now cancer free.

While it's hard when you have cancer not to think about it all the time, try doing the things that you love most to take your mind off it even for a little bit.  Things should start to feel better once you have your exact treatment plan.

While I won't say chemo is easy it is doable.  Your medical team will do everything in their power to make sure that you stay well during your treatment.  They will give you meds to help combat any side effects you may have and you will also be given the contact number of your oncology ward so you can ring them if you have any side effects that bother you.

Wishing you the best of luck with your treatment when it starts and hopefully you won't have too many side effects.

Best wishes

Daisy53

I never thought of it as that Gay. You are right my cancer went with the surgery. That is a real lightbulb moment for me. It’s made my day. So all the treatments I’m having are preventable to stop it coming back. Thanks for your kind words they are spot on xx

Hi Valsey 

I too have lobular 55mm grade 2 , had mastectomy 17th November.They could only find one lymph node but that was positive.

did they say anything about full node clearance ? They said my chemo and radio would deal with this.

Since I find out about the node I have found it very hard to switch off the anxiety too.

Positive stories are so good to hear x

Hi I know my anxiety is through the roof. Having big problem sleeping. With me ultrasound said all lymph nodes looked normal but when surgeon did my mastectomy he said the sentinal node felt hard so he decided to take out a further 11. I have read though that some surgeons prefer to treat further suspected lymph nodes with radiotherapy to kill off any cancer in them. This is so you don’t have mbility problems with your arm further down the line so that’s probably what they are doing. Now I’m waiting for ct scan on Thursday and every ache and pain I get I think it’s the c spreading. I’m so fed up with it now and it’s only just started. Good luck with your results. Let me know how you get on best wishes Val x

Thanks for your kind words. It’s a big mountain to climb eh xx

Thanks Val Same here nodes were clear on ultrasound and MRI , even surgeon said they looked soft when he took them out with biopsy -turned out two were breast tissue not nodes anyway, so bit a of a shock when one node came back positive.

I understand the future issues with the clearance , I'm afraid I'm one of those just chop it off , take it away sort of mindsets but I will listen to the Oncologist

I haven't been offered a CT scan -not sure why -will ask about that too

Stay strong x

Hi. I had lumpectomy with breast reduction in October.  2/3 nodes had cancer. Had full axillary clearance on 26th November.  Get my results  tomorrow.   I'm generally very positive but it sure is a roller coaster of emotions.  I just think I know what the action plan is when I get more results and it changes again. 

Hang in there. I do other things and can concentrate on a good book or film. However cancer is a big part of my life right now. So I don't worry about being immersed in it as long as it's positive   supportive. Ie organising holistic therapy.  I don't want my cancer to be the elephant in the room so to speak. 

Here anytime you need to chat. X

Good luck with your results. Saw the Oncologist today and he explained about radiotherapy.I am paying for Onco type DX to be sent to America to hopefully see whether chemotherapy would be beneficial x

Hi

I was diagnosed with invading lobular cancer in September. I had a WLE and was supposed to have axillary clearance but they only removed 3 nodes because of complicated vascular involvement. 2 out of 3 did have cancer cells. 
I didn’t know but they sent tissue off for Oncotype DX and it came back with very low risk (13). My consultant oncologist said it would be unethical to give me chemotherapy (she had previously recommended it as she didn’t know the Oncotype Dx had been requested).  I am now waiting for radiotherapy to start (5 sessions, no boost).