**DECEMBER 2021 - MARCH 2022 BREAST CANCER CHEMO**

Definitely like childbirth and forgetting. Still haven’t lost my baby weight and my daughter is now aged 24! Will now be blaming weight on Chemo and Anastrozole  

I have a similar charity not far from me. I’ve had a look at their site and they have a few things going on - not braved getting in touch with them yet but I will in a week or two when I understand  how I am with chemo and SE (hopefully no SE ).  

Your chemo centres sound amazing!

Mine is so rubbish and blinds always pulled shut against window! Like you're in some prison. Grrrr it would have been so nice to look at some greenery, nevermind a view! Your commune sounds so supportive, where I live the nearest Maggies is an hour away! Lol am I sounding terribly envious lol

Anyway...day 11 today. I am finding scalp pains still exist.   Does anyone take manuka honey? I also will try aloe vera. Got a dull ache at lower back. Hopefully it's at the tail end, and I am on the up and can feel more human from now on. Taste bud is one that I struggle with too and will never take it for granted!! 

Had onco call yday. He seems to think the scalp breakouts is from Perjeta causing inflamed follicles before hair loss. But it's also on my face!! It's so unpleasant and I feel hideous like I am morphing into alien. The steroids also cause my acid reflux sadly but trying most alkaline food to help it along.

How did first/ subsequent infusions go for some of you yday? If you are struggling, don't...we are all in the same boat. Xxx

Cx 

Oh claud sounds like you are really suffering,I had my first treatment yesterday of EC,I felt ok after just quite tired until the evening that is,I took ondansatron half hour before trying to eat something as instructed by the nurses and omg,it has the opposite effect on me,I felt sooo sick soon after,I then took a different one,had 3 ginger biscuits and went to bed!I got about 3 hours sleep and have been awake since! Xx

Animal & Claud, sorry you're both suffering. I found you have to experiment with the different medications. I had awful constipation on my first EC so took Movicol, senna tablets and was also eating dried apricots- I ended up having to take immodium as my bowels just went mad! I now just take the Movicol from the day of chemo for about 3 days.

Ive slept terrible the last two nights. Wednesday will be from the steroids but not sure what happened last night, ended up listening to 3 hours of podcasts. Hoping tonight is better. 

Claud my scalp didn't start tingling until about day 15/16 after my first chemo. My partner & son shaved my head on a #4 just before my second chemo. The relief was immense. It's never totally all fallen out though. I've kept some of it. This was taken 23rd December. I'm not sure if it's starting to grow back or whether it's wishful thinking. 

Hi JAC,I had somemlower back ache last night too but haven't got it this morning thank goodness,so you shaved your head before your 2nd treatment?had it started falling out or you made the decision to beat it ? X As for bowels,I'm not brilliant with mine anyway lol.

Ami, my onco nurse said hair will shed just before second chemo. But some feel they would like to gain control and shave before then. I am two minds because I will feel even worse seeing the blips all over my head and get depressed. At present they're hidden. It's sooooo baaaaad. 

I take a couple paracetamol before bed and manage to sleep through to 7am...luckily I love my sleep...my dad use to joke...I can sleep thru anything anywhere lol

My worse days are 4 to 8.

C x

Days 4-8post each treatment?I did have a slight headache yesterday post,but I had it before I started tbh,I think where I was nervous,but was told can't take paracetamol as it will mask a temperature ??

My scalp was really hurting, it felt like when you have a ponytail in too tight so I decided to just shave it off. 

I take my temp then take painkillers. 

Oh Jac. It's horrible when u cannot sleep. I do hope it improves. Try "my sleep button" app. It's a visualisation technique to get u off to dreamland.

Steroids are so bad. It gives me so much acid reflux. You're right it's all about experimenting to see what works! 

It's the funniest sensation when the tongue touches the teeth it's like grit, but today feels smooth...ooooh I get rather excited at this prospect!

Tq for sharing your photo. I feel maybe my next step will be pixie cut. Who knows!! My fatigue is much more today. 

C x