I don’t like my chemo care nurse. What should I do?

FormerMember
FormerMember
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Hi

Im not sure whether it’s the shock of starting treatment, but I found my chemo nurse very difficult and I’m not sure what to do about it. Everyone else I dealt with was lovely.

just a few examples from yesterday 

She asked me to tell her when an hour had passed. Then when I did she told me that I wasn’t the only patient and I couldn’t expect everything be to happen on time - seemed angry with me, but I only told her the time because she she specifically asked me to.

She was very insistent that I only needed the shortest time under the cold cap. I’d been told I needed the longest time. I asked the senior person on the ward while he was talking to me about the cap and he confirmed it should be the longest. Again she seemed angry and walked off. 

I told her the cannula/catheter she put in hurt. She told me if I said it hurt, they’d have to delay treatment so did I want to say it hurt. I insisted but I felt she took it personally. The other nurses were fine and made it clear it was important I spoke up.

When the machine I was attached to stared beeping, I asked her (calmlly) what it was and she told me that my treatment hadn’t started,. I asked again why it was beeping and she said she didn’t know. I asked whether we should ask someone and she started telling me how long she’d been a nurse and that she knew what she was doing and did I want her to stop being my nurse 

ive had so many investigations leading up to yesterday’s first round of chemo and this was the first time that things just happened without discussion. She wouldn’t answer my questions about what was happening. She just told me to calm down and asked whether I wanted to stop treatment. I was asking very calmly and quietly and being super polite and genital to try and avoid angering her.

I got answers from other nurses when they saw me crying and asked what I needed. My questions were really basic like what’s in the machine and how long will it last. The other nurses seemed very happy with questions. 

There were other issues as the day went on.

 I’d just like someone who answers questions and can judge whether something I’m feeling warrants pausing treatment - I’m not qualified to make that call! 

What should I do?

  • Wow! Emphatically, you should demand, and I do mean demand, that this monster never comes near you again. From what you are telling us here, the answer to her question about whether you want her to stop being a nurse is a definite, "YES!" because she isn't being a nurse, she is being anything but.

    You can request to see the Matron, complain about this nurse's behaviour and say you are unwilling to have her "caring" for you again. Also, on the day, when you walk in, if you see you have been allocated to her, tell them to get someone else to care for you. Stand your ground even if they try to persuade you otherwise, and be firm. 

    Also, talk to PALs, log in a formal complaint with everything you told us here.

  • I’m sorry, what a dreadful experience, especially being your first chemo session when you expect great care and kindness in what’s a scary and challenging situation.  We are already having to cope with all sorts of emotions after a  breast cancer diagnosis that I’m shocked a nurse could be so unsympathetic.   I’d like to think she was just having a bad day and this won’t happen again, but if it does I would think about asking someone senior to see if you can be allocated a different nurse for the above reasons and consider making a complaint against this nurse. 

  • FormerMember
    FormerMember in reply to GreyCats

    Thanks so much! I really needed someone else to tell me her behaviour was insensitive. 

    Should there be someone in my care team who might be able to keep her away from me or do I have to make a formal complaint? 

  • FormerMember
    FormerMember in reply to FormerMember

    I wouldn’t know how to contact the matron 

  • Hello Kiss Tanbul, I've just had my 7th cycle of chemo and it's been very rare to get the same nurse twice. There tends to be a few assigned to each chemo day unit at my hospital, dealing with all of the patients rather than assigned to specific people, plus my chemo session times have varied, so you may find that you do not get the same nurse helping you at your next session. As mentioned above, it may be that she was having a bad day but if you do get her dealing with you again and her manner is the same then I'd suggest just asking to speak to the matron/lead nurse and explain that due to her manner you'd prefer a different nurse. From experience, making a formal complaint to a hospital or PALS has not resulted in any action or meaningful response, just a lengthy delay in hearing back from anyone, although your hospital trust may be different and more proactive. Best of luck with the rest of your treatment as it is a stressful time and you need to feel comfortable with the staff who are treating you x  

  • FormerMember
    FormerMember in reply to LalaLou

    Thanks for that suggestion. I will just ask that she doesn’t care for me the next time, rather than doing anything formal. 

  • Do tell someone from your care team, starting with your key worker (breast cancer nurse in most cases) but in order to find the matron ask one of the other nurses, or talk to the receptionist in the unit, even to the schedulers, someone there would be able to find her for you.

  • This was interesting to read. In the hospital where I am, there are several rooms, each containing about 6 beds, and two nurses are assigned to each such room. 

    In the early days I just went where I was told, but once I got to know them and how they work I asked to be assigned to specific nurses and they were happy to oblige, having realised that I would only let certain people cannulate me (smart veins that sink all the way to the bone when they see a nurse coming.)

    So far my experience has been that as long as I keep my manners in and stand firm regarding requests that are completely reasonable, some things will indeed happen as I want them to.

  • FormerMember
    FormerMember in reply to GreyCats

    That’s really useful to know that you’ve asked for specific nurses and it hasn’t been a problem. Thanks

  • I would definitely complain.  Just ask any member of staff to speak to ward manager or sister in charge.  If she treated you like this she will have treated others.  Other nurses must have noticed her attitude so perhaps they would appreciate patients speaking up too.