Hormone therapy

Oh my goodness.  How are you coping?  You are unwell yourself and caring for everyone else.  Please take advice on what help you are entitled to for your parents firstly.  Citizens Advice may be able to help.  Talk to your doctor about your situation and whether you can try other hormone blockers.  I am so sorry you are struggling.

Thank you so much for the kind reply,I really appreciate it. My parents won't have any care in.my girls and my husband are very good. I m just feeling so ill.

Hi, this sounds so very difficult for you. Is it worth talking to your oncologist to understand the implications of stopping the AIs, could you ask about a change of type? You can also chat to some of the experts here at Macmillan to talk through the pros and cons. You can reach them on 0800 808 0000 from 8am to 8pm daily.

I appreciate you are also considering your parents' wishes regarding their support, and difficult as it is, maybe finding a way to get more support for them is going to help. I know that might feel selfish, but perhaps something to think about. Apologies if that is it a little too direct and of course I have no clue about your family situation, just a thought. Best wishes 

I liked your suggestion of having some outside help for her parents.  I really do understand how they feel too but Sweet Caroline you need some time to heal and take care of yourself.  You will be n good to anyone else if you can’t take care of yourself. Hugs to you as you are very giving .  ️️

You re right,I should get care for my parents,I can't cope with them.they are just adamant they dont need it! Yes, I ll try talking to macmillan,thank you.

Thank you so much.x

Sweet Caroline

I feel for you.  My mother died a few months before I was diagnosed followed by COVID a few more months later. She was 96 but I remember thinking how on earth would I have coped. You may have done this, but have your parents got all the financial help they are entitled to and at the right level. Attendance Allowance is there and is not dependent on them having help from anyone. For example if they have stair rails or grab rails or even walking sticks it is all relevant.. if they need to toilet during the night and have commodes or hang on to the wall to steady themselves also relevant. .Filling in the form include the things you do to help. Be honest but as comprehensive as you can. It may be the cost of the care that is worrying them and although this wouldn't cover it, it would be a help.Macmillan could maybe advise you on this. Technically sovial services should help and advise but that doesn't always happen. Help the aged is also a good source of advice and help. There is also carers allowance.

I hope you get something sorted that suits you all.

Good luck with your treatment and recovery x

I should also have said I found it difficult when taking letrozole and was changed to exemestane which although not perfect was slightly easier x