Initially was told by the bcn that the team have decided to go with radiotherapy. Chemo has not been advised due to Iow oncotype.
however speaking to the oncologist yesterday she said the choice is ours. 1/1 sentinel node was positive and 1/5 axillary node is positive ( they did axillary node sampling).
Radiation will be given to the axilla but not to the collar bone and neck. The oncologist said this is the risk as there may be some lymph nodes positive- but highly unlikely. So she said it is up to us to decide. She said the hormone medication letrazole will be given.
any opinions or any one who had similar experience ?
Hi Daisy03 don’t really understand why they are leaving the choice to your Mum, surely they are in the position to have a better understanding. I had 2 out of 4 sentinel nodes positive but they recommended I have full auxiliary clearance, not sure yet on the chemo but depending on whether any of my auxiliary nodes are positive I’ll need a full CT scan. I know there has been research into whether it’s of equal benefit to have radiotherapy instead of clearance but I would have thought they would have done it anyway. As I said I find it strange that they’re giving you the choice.
I would be confused and stressed out to, it would be easier if they explained why they aren’t just doing the clearance. If the oncologist said it makes no difference whether you go for clearance or radiotherapy to the auxilia the outcome is the same, then the best one would be radiotherapy as no more surgery but she has to give concrete evidence to you as after all she’s the oncologist.
Hi Daizy03
I know this thread is from a few months ago but I wondered what the outcome had been for you?
I was diagnosed in December ( grade 3 invasive lobular)and initially told plan would be surgery and radiotherapy only as chemo would be ineffective , also told ultrasound to axillary nodes was negative.
Had mri late December with consultant saying at next opa that ' surgery and radiotherapy still the way forward but that chemotherapy would ' be discussed ' ( tumour was found to be very large 8cm +)
I had a ct scan 4 weeks ago ( told results were negative to metastases) prior to a mastectomy 3 weeks ago diep reconstruction and sentinel node biopsy
Have now been told sentinel node biopsy positive to cancer and will need axillary clearance and chemotherapy and still likely radiotherapy. I understand the need for chemo if axillary nodes positive also but just wondered of anyone had had a similar experience and whether it is likely the axillary nodes will be positive if negative on ultrasound in December
I am trying to be positive but can't help but have worrying thoughts at times :(
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